Pulmonary-Fibrosis Books

My daughter was diagnosed in 1997 at 1 month of age. Fortunately for our family we had the best specialist to help diagnose and treat her condition almost from day 1 of her life. And her doctor is none other than Dr. Orenstein himself (or just Dr. O to us). I can speak from personal knowledge that he is without a doubt the most informative doctor I have ever been around. He truly cares about the children in his care and he takes a proactive role in their health and well-being. His book is considered the CF bible by those in the know in the Pediatric Pulmonary field. As you read this picture a man with a bow tie and sandals explaining this to you. It is very easy to read and understand which when it comes to this disease is very important. I am happy to say that my daughter is almost 12 and thanks to Dr. O and his staff is in excellent health. If you know someone with this disease get them this book or better yet get it for yourself as well. Knowledge and understanding of the disease can really help.

This book accurately describes the disease cystic fibrosis (CF) and offers guidance in self-management on day to day problems. As a mother of a son who has CF, I highly recommend this book to any family dealing with CF.

I eagerly await the 3rd edition of this book. As a fully involved CF parent, my 8y/o daughter's care has benefited from my increased knowledge. I can form theories and question her caregivers from a more informed perspective and that is a win-win situation. If you have a child with CF, you should have this book. I call it the CF Bible.(Although encyclopedia would be a more accurate description.) I feel this book should be given to the parents of all newly diagnosed children.

I really enjoyed this book. Anyone who needs to learn anything about Cystic Fibrosis should definitely buy this. It covers everything! I read the whole thing in 4 days and I understand so much more now.

Im a teenager and was diagnosed with CF when I was born in 1989.
It was recently that I wanted to do some more reading on my disease. I looked through some books and was shocked by what I was reading. As many of you know, the out-of-date books on CF can have some very frightening information, like death and more infections, and etc. It was I discovered this book that I was so much more relaxed about my condition. This book is up-to-date and tells the real facts about this disease. After reading this, my disease doesn't scare me anymore.
If you are a teen, like me, I suggest you read thid.
If you know anybody with CF, you should read this book or have them read this. Don't let them read those early books on CF with the grim facts...have them read this with the true and helpful facts.

This is a fabulous book. A very inspirational read for anyone considering a lung transplant. The stories are all from personal experieces of transplant survivors of all ages and from around the globe. I absolutely love this book and I still read it daily!!!!!

If you, or someone you know, is in the process of waiting for a lung transplant, this book is a must read! It will truly help you keep your sanity during a very frightening time. The stories are honest, from the heart, real life experiences. I've re-read this book a couple of times and it still fills me with hope every time.

it helped me write a paper for cystic fibrosis for school

Designed for people who are new to idiopathic pulmonary fibrosis, this sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it is designed for patients who are less familiar or are new to the Internet as a medical research tool. It tells the reader where and how to look for information covering virtually all topics related to idiopathic pulmonary fibrosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are compiled and reproduced to give you some of the latest official information available to date on idiopathic pulmonary fibrosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Idiopathic Pulmonary Fibrosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Idiopathic Pulmonary Fibrosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Idiopathic Pulmonary Fibrosis; Chapter 5. Books on Idiopathic Pulmonary Fibrosis; Chapter 6. Multimedia on Idiopathic Pulmonary Fibrosis; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; IDIOPATHIC PULMONARY FIBROSIS GLOSSARY; INDEX. Related topics include: alveolocapillary block, cryptogenic fibrosing alveolitis, diffuse fibrosing alveolitis, fibrosing alveolitis, Hamman-Rich syndrome, idiopathic diffuse interstitial pulmonary fibrosis, interstitial diffuse pulmonary fibrosis, pulmonary fibrosis, usual interstitial pneumonia.

My mother died from pulmonary fibrosis. Until she was diagnosed with it, I had no knowledge of the disease at all. This book was very informative to me and answered all questions that I had regarding this horrible disease. It is a MUST read for anyone desiring understanding.

I personally have the 1993 edition of the book, which is an excellent book to learn about PF, however it is technical. Much has changed since the 1993 edition regarding PF. For the most current up to date version, I would highly recommend the 2003 edition. The new edition is more up to date with current advancements and the accepted definition of IPF. It should be available now or very soon (in hard cover and I believe it again comes with a companion disc.)