Polymyositis Books

This was a very interesting, although somewhat disheartening, book. It is a group of case studies told by the patients who suffer from myositis. Often the cases seemed quite hopeless, therefore, it was hard for someone also suffering the disease to have much hope. The book also should have been edited for grammatical mistakes.

There are very few publications out there providing supporting information for Myosis sufferers. This one provides a great insight into the disease as well as the specific variations ie (DM). The case studies are particularly interesting and useful. It's great to see how others are coping with their disease and how most are recovering well. This is an American publication, I have not managed to find any UK publications for this condition.

In two medical training centers, I first saw the book, "Coping with a Myositis Disease." The real life stories of those suffering from a Myositis disease was written from the heart of the writers, in their own words without editorial interference.

The book can not be praised enough for the benefits especially for new Myositis patients.

No wonder the book has a five star rating and first place Best Seller of Myositis books.

Finally, Mr. Kilpatrick was able to capture the common person's feelings about dealing with Myositis.

Thank you, Amazon.com, for making the book possible on the Internet.

When I gave my story to be included in this book, it was explained to me that it would be in my own words. This made me a little nervous and I took pains to use proper spelling and grammar. Well, my published story in the book contains numerous spelling and grammatical errors which were not made by me. This is very distressing for me. I must not be the only one, because this seems to be a pattern throughout the book. Anyway, all this aside, this book is a must have for anyone diagnosed with myositis. The stories helped me so much. People have thanked me for my contribution. How I wish this would have been available when I was newly diagnosed! But I do feel a great need to set the record straight in that the words of the patients were published with grammar and spelling errors they did not make. This must have happened during editing or data entry. Still, the book is very readable.

As a person diagnosed with Signal Recognition Particle Antibody Syndrome, a very rare and agressive type of Polymyositis, I feel compelled to "warn" Myositis patients about this book. Yes, it does make patients realize others are experiencing the same
debililitating symptoms you are; however, I found this book to be VERY NEGATIVE. It doesn't list the positive aspects of this disease today--there is hope with ongoing research; knowledgeable specialists; medicines available to relieve symptoms; and effective therapies. I KNOW personally--a positive attitude is essential in successfully dealing with this difficult illness.