Multiple-Sclerosis Books
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One of a KindReview Date: 2004-08-20
A must read!Review Date: 2004-08-16
My Story is Really Their StoriesReview Date: 2005-05-18
Though titled "My Story", this book is really "their stories". In this book, she uses her trained eye to illustrate 32 essays personally portraying the lives of men and women with Multiple Sclerosis.
They range from 17 to 70, across a spectrum of ethnicities, genders, occupations, socio-economic backgrounds and family circumstances.
Through her book, Amelia captures the unique approach each person has used to frame their chronic disease with, not only a positive attitude, but with a positive approach to life.
She also includes the caregivers ... those frequently forgotten in the struggle with MS and all chronic disease.
Her essays help others to see, through the stories of real people, the different possible treatments and therapies and the techniques for coping (such as exercise, yoga, creative activities and competitive sports).
Her photographs capture the people behind these essays, putting a real face, a personal face, on what is often discussed in impersonal, clinical terms. You don't just read their story; you are drawn into a human connection with them.
This is a book to buy and read. And it is also a book to buy and display, a coffee table book.
Discussing MS with friends and family can be difficult. Chronic disease can create a "distance", a separation. This book can help to bridge that gap.
As someone picks up this book to browse and becomes captured by the photographs, it can crack the door to an open conversation about MS, about what it means and about how lives continue after diagnosis.
my story: an open windowReview Date: 2004-08-18
I now have a copy of "My Story" on my coffee table and I'm truly amazed by the number of people who, because of the presence of the book, are finally able to speak and ask questions about MS . They glance through the book and suddenly a dialog window opens.
The photos are superb, respectful and celebratory at the same time and every person's essay is different. I highly recommend the book.
Review for My StoryReview Date: 2004-08-17
Many of Amelia's photographs portray some of the more difficult aspects of the disease, how many young people have learned to live with what is often a chronic illness. Her photographs also show how indiscriminate MS really is and how, like myself, you too could walk up one morning numb and tingling from head to toe. For me, the most healing aspect of the book was how others handled their emotional difficulties. Early on, I felt as if I was being punished for mishandling something in my past. I felt lonely and isolated due to my new differences. However, like many of the other biographies, I too have learned that 'attitude is everything' and that you alone are capable of taking the 'limits' out of limitations.
The book's addition of the often forgotten care giver was an extremely refreshing aspect of her book. I always thank my husband for having made the decision to stay but so little credit is given to these unselfish individuals. It is easy to take others for granted until your welfare is suddenly out of your control.
I gave Amelia a five star rating not because I was included in her book but because her photographs speak for themselves! Even if you are not faced with a chronic illness, the biographies will touch you with their uncensored frankness. Amelia walked in and out of my life but her pictures captured a fleeting glance, pose or emotion that explains to others the essence of that particular moment in time...
Great work, Amelia!!!

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Collectible price: $22.95

meaningful Review Date: 2007-02-20
mixed reviewReview Date: 2006-02-12
MS is a terrible diease that affects the Central Nervous System and there's nothing funny about that. Even the title of the book is seriously upsetting(How Squiggy caught Multiple Sclerosis and Didn't Tell Nobody). You can't catch MS, and to put that in print is misleading.
I take my MS, the treatment for it, and all the symptoms very seriously. I have no desire to joke about them.
Some of the information in his book were very informative and very much worth reading, however I believe his approach is less than ideal.
Buy and read this book!Review Date: 2005-09-20
David Lander has a great story! Review Date: 2005-09-07
Great BookReview Date: 2006-04-02

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empoweringReview Date: 2008-10-14
I found Ann Sawyer's book to be accurate, up to the minute, and supremely hopeful. And the diet is specific enough to try at once. I am deeply grateful to the authors and all those who shared their experience and hope. I will be healthier in mind, body and spirit for the companionship in this book.
Great bookReview Date: 2008-09-09
MS Recovery DietReview Date: 2008-09-05
I wish they were more specificReview Date: 2008-06-15
This book is great for that.
I was really hoping for more specific guidelines though, for example.
How to prepare for an ELISA test (if this is possible)
Where to get an ELISA test done.
Start off with X,Y,Z suppliments.
Eliminate one food group at a time.
Common alternatives to common (problem) foods are ...
Staying strong and avoiding temptations (there are a few excellent ideas on this in the book but I felt that they could have been restated towards the end of the book)
I understand that this information IS in the book but I just felt that after reading it I needed more guidance.
Changing your diet is hard enough - when you have such a deeply compelling reason for changing it I feel that one cannot have too much guidance in acheiving it.
I feel extremely lucky to have found this book!Review Date: 2008-03-29
But there were things I didn't know in regards to food & MS. This book explains why diet is important & how different foods effect MS. I also enjoyed reading all the personal case histories of real MS patients who have tried this diet.
I plan on staying on this diet the rest of my life. (I want to do everything possible for me to achieve the best possible outcome, so I also take one of the MS drugs (Avonex) in addition to this diet.)
Also, this book explained more to me about the disease of MS than all the neurologist's I have seen put together. I am deeply grateful to Ann Sawyer & Judith Bachrach for writing this book...Thank You!

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Thank God for this book and for LDNReview Date: 2008-08-29
THANK YOU MARY - KEEP UP THE GOOD WORK !
favorable view of a nutrition writerReview Date: 2008-01-22
Very interesting!!!Review Date: 2007-09-23
since trials are rarely done. It would be fantastic to have an inexpensive drug recognized for its positive benefit on chronic debilitating illnesses. We need the $$$$ signs to go out of the drug companies mentality and push to investigate and be positive on helping so many who struggle daily. Maybe more success stories need to be published.
If you have MS or any autoimmune disease...READ THIS BOOK!Review Date: 2007-10-10
Mary Anne Bradley is an AngelReview Date: 2007-01-29
Kelly Collentine

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Good InfoReview Date: 2008-02-29
Mutiple Sclerosis Q & A: Researching Answers to Frequently Asked QuestionsReview Date: 2008-01-25
MS Q&AReview Date: 2007-01-03
Good ReferenceReview Date: 2006-11-15
helpful book for ms patientsReview Date: 2006-11-04

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If Only I Had A Brain Injury by Laura Bruno, M.A.Review Date: 2008-05-23
Bruno equates a TBI to The Wizard of Oz classic. Although I have Lyme disease (which in many cases can be likened to a TBI), and can relate and benefit from this book, I never saw it put so simply - and well written. Just as Dorothy is whisked to another place, it is the same with most injuries and illnesses. We leave the life we know for a place we have never been before (and few want to make it a vacation spot). Come take the first step on the yellow brick road - where the journey to recovery begins.
Glinda (as we remember as the good witch) starts us on the path. Contacting organizations and support groups is an important step. Who doesn't need support, information, and to hear from others on virtually the same path? There are many things to do to prepare us for the first steps to recovery, but often we forget where we need to begin. Order is the way to end chaos. Support is the way to end aloneness. And information is the way to the next steps that must be taken if recovery is the goal. And don't forget, some who have grown accustomed to your disability-state may not want you to recover - learn why in "If I Only Had A Brain Injury."
There are the ruby slippers and the wicked witch. The information in this section is most helpful because it starts us focusing more closely on ourselves. Here we can begin to turn the injury or disease into a new beginning. When we beat ourselves up or refuse to accept what we cannot change, we slow or halt our journey. Forgiveness and identifying change are good things.
Okay, we're on our way. We may not be skipping yet, but we can add pep to our steps when we look at what can remove some of the stumbling blocks that have been preventing us forward movement on our road to recovery. Bruno learned that buying quality electronics (a computer monitor) cut down on her headaches and dizziness; which allowed her to work; which enabled her to earn a paycheck; which helped her to feel she was still in Kansas.
There are more ideas that are presented in this work - classical music, relationships with animals, and cultivating new friendships, to name a few. These will open new doors in the land of Oz and you may even discover new things about yourself that you never knew existed.
In "If I Only Had A Brain Injury," Bruno has given us a map of the Emerald City, introduced us to the Munchkins, and provided a beacon for anyone who is associated with injuries and disease. It is a one-of-a-kind book.
This a must read for all, with hopes that you find an owl in your life, too.
Sue Vogan
[...]
Lyme Disease help here too!Review Date: 2008-07-08
I got this book yesterday afternoon and I have been gobbling it up! Right from the start I identified with the writing. I, too, had a feeling that my evening at the outdoor amphitheater that July 26th night in 2005 could change my life. I didn't know how and so I ignored my irrational feelings. I went to the ballet and although we were sitting inside I must have picked up the tick as we walked across the lawn to the amphitheater. 10 days later, almost to the hour, I was very, very sick. The Lyme crossed the blood brain barrier and I have had neurological and emotional problems. My stupid neurologist says I am "in the normal range" even when I have vertigo and was falling back on my head walking down the street, have huge memory gaps, sometimes make no sense, etc. I told him it wasn't normal for me, but ended up getting nowhere and leaving his office in tears.
My boyfriend of 12 years (with whom I attended the ballet that night) became very frustrated and angry. I am no longer the same woman he signed up for. We separated in the Fall of 2007. He felt I was not "trying hard enough" to get better.
My family thinks I am mentally ill. In fact over the last 9 months I have been misdiagnosed with either depression or Bipolar II disorder and mis-medicated, which DID make me pretty crazy. I am now convinced I ought not to be on any medications but treat myself holistically. I have been medication free for one month and that has made a huge difference for me.
So, I am so thankful for the book! I am finding out that I need to listen to myself and not depend on doctors to be able to fix me or even diagnose me correctly. I have been changing my diet and using it as my medicine. I have been making sure to get outside and walk or recently I can bicycle again! Soak in some sun. Surround myself with positive people--no angry boyfriend--as much as possible. I am painting again.
I think I was already headed in this direction -- after 11 months of putting my hope and trust in, then floundering in, medical offices, hitting my head against (figurative) wall after wall. Laura Bruno's book gives me such strength and hope for this journey.
A Clear, Heart-Felt Guide And Support For All Life ChallengesReview Date: 2008-06-22
An injury - an opportunity! Review Date: 2008-06-06
Through that loss, author Laura Bruno,
finds an alternative path to health and
trusting herself. She demystifies many
medical mysteries all the while reassuring
those in similar situations not to suffer alone the
embarrassment and self consciousness of a
brain that is learning to function again -
perhaps differently. If I Only Had a Brain
Injury is a compendium of spiritual and
emotional support. It includes 52 healing
hints while leading its readers to become
wizards of their own healing. It offers
support to the caregiver and acknowledges
how events changes all involved.
Ultimately Laura Bruno wants everyone
to find their own deeper meaning of
injury - an opportunity to connect the
mind and heart - to live deeply, meaningfully,
and creatively through one's
essence.
A Great Resource for Traumatic Brain InjuriesReview Date: 2008-09-23
Bruno tells her own story while expertly weaving her insights within the context of the Wizard of Oz. I loved the humor, playfulness and utter seriousness in the book in the chapter titles and content. In the chapter, Somewhere Over the Rainbow Bruno states that her aim is, "...to inspire you and to guide you to resources that will empower you to take control over your own health and wellbeing."
Gradually after Bruno's own accident she began to realize that she had entered into a new land, and needed to learn anew. She recounts these realizations in the chapter, We're not in Kansas Anymore. Bruno says, " Like Dorothy, I knew I could not return the way I arrived. Like Dorothy, I eventually found my way "back home," but I took the Technicolor journey with me. I wrote this book to help others to do so, to."
And, like Dorothy following the yellow brick road to find her way back home to Kansas, the book emphasizes actions you can take in your recovery from the symptoms of these various illnesses that are so mysterious to the medical community. Bruno says in the chapter titled "Glinda," that "This chapter suggests ways to find the Glinda's along your journey...Even in the Wizard of Oz, Glinda prefers to help Dorothy help herself." She includes an excellent listing of resources to contact. For instance, she notes that you might want to contact a Behavioral optometrist that specializes in connections in mind, body and vision because "...a majority of people with neurological issues suffer from visual impairment.
If I Only Had a Brain Injury is like a breath of fresh air as it offers hope where typically there is none. As Bruno notes, so many head injuries and their effects are not detected, diagnosed or treated. Many people are told that they do not show any medical evidence of a medical injury even though they are experiencing severe difficulties in daily functioning since the time of their accident or since the onset of their illness. And, even when a brain injury and trauma is recognized, there have been very limited resources to assist in continued rehabilitation.
My level of awareness about the nature of head injuries and its effects has risen dramatically from reading this book. This includes helping me to understand some of my own experiences from knocking my head with numerous falls off of horses, minor car accidents and some of my own hard to diagnose symptoms. I now keep this book by my bedside for personal quick reference and I also have a copy available in my office for those clients who have had head injuries.
If I only Had a Brain Injury is an excellent resource that I very highly recommend for anyone who has experienced a Traumatic Brain Injury as well as their family members, caregivers, medical professional and therapists. For anyone whose life has been touched in some manner with a Traumatic Brain Injury or by any illness that has been a medical mystery, this book will be of great value.

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EncouragingReview Date: 2008-02-06
A Lesson on Intimacy with GodReview Date: 2008-01-25
Shawna Marie Bryant, Speaker, Author, Worship Leader
www.shawnamarie.com
Couldn't put it down!Review Date: 2007-11-27
She SoarsReview Date: 2007-11-01
Jo Franz is an example for allReview Date: 2008-05-26
Paula Boyd, Lemon Grove CA

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I wish I had read it before!!!!Review Date: 2008-05-26
It is a great tool to have because you do not deal with your MS the same way on a daily basis. There are times that, even if it is in written form, you need to look for answers.
The way the book is written, it is a sure sign that you do not have to have MS to write a good book, but as an MSer you do know what we face every day.
Great book, will keep using for future reference.
excellentReview Date: 2008-04-02
Best book on MS and feelings I have ever read!Review Date: 2007-09-10
Someone understandsReview Date: 2007-09-01
Great book!Review Date: 2008-05-10

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A fantastic read!Review Date: 2008-10-24
<Review Date: 2008-09-08
I spent several years in and around the California rock 'n' roll scene of the late '60s/early '70s, and none of the backstage detail rings false or hollow. The characters don't either; they have their talents and their flaws, their virtues and their vices. It's said that it's never too late to have a happy childhood; it's never too late to grow up, either, and that process is one of several things that make this book a good bit more than a sex, drugs & rock 'n' roll potboiler.
The only way Ms Grabien disappoints me is that she doesn't write as fast as I can read, and so I spend a good deal of time in unrequited lit-lust. A new book from her presents me with a dilemma -- read it one or two gulps, like a kid with a bucket of ice cream and no witnesses, or take one chapter at a time, like someone who's been given a small box of exquisite chocolate truffles? Either way, it's over too soon, and the pining for the next begins.
Another great mystery from a great writerReview Date: 2008-07-22
I also really liked the descriptions of backstage and the real workings of a megaband. I've only experienced it from the other side of the stage, so it was fun to know what those people you glimpse in the wings are doing.
I read this book in one sitting. It was a quick read, but not fluffy. Kept me guessing until the end. Highly recommend it!
Hard to beatReview Date: 2008-08-18
Big stage, intimate stakesReview Date: 2008-07-18
And that's just what Ms. Grabien does, with her typically lyrical turn of phrase. Check [...] for a link to her video and a taste of the style, and check the top of the amazon page for links to inside the book to get a taste of the writing.

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Life changingReview Date: 2008-11-23
I've cleaned up my diet (almost no sugar, as cancer cells love sugar), lost body fat with diet and exercise, take detox supplements, and don't obsess over the cancer. I was supposed to be dead 6 years ago and up until the last year was just getting by. Maybe something on the scan would be a little better but something else would be worse. It was frustrating.
I attribute a great deal of the healing to the guided imagery and affirmations on this disk. The guided imagery is so moving. The emotions really well up and I'm a little sad when it's over. Sometimes I listen two and three times in a row because it reaches so deeply within.
I can't recommend it highly enough. I'd give it 10 stars if that were possible.
One of my MUST HAVES!Review Date: 2001-08-21
Incredible!Review Date: 2001-10-02
A Must HaveReview Date: 2003-01-27
Meditation to Fight CancerReview Date: 2007-06-07
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This is a wonderfully unique look at the amazing people who are challeged by this disease and how they live extraordinary lives in spite of it. Amelia's photography is a window into this world, her work is "present" and revealing of who people are.