Interstitial-Cystitis Books

Used price: $9.64

Definitely something to relate to!Review Date: 2008-08-31
A must read for anyone dealing with ICReview Date: 2007-10-06
I haven't tried all the things Catherine has done to be able to live her life IC free, but I learned so much from her, another IC paitent, not a doctor or a nurse or a friend who happened to read about the next "cure all" treatment I should try. I am trying to get my disease under control and I am anxious to try out her suggestions. I hope to be where she is now one day with my disease gone (and she can even drink Orange Juice again!); nothing else I've read even gave me hope that it is even possible.
If I've learned anything in the 3 years it took to get dianosed and the year I've been trying to deal with having IC, I have learned no two bodies are just alike and what hurts one IC paitent may not hurt another, and what heals one IC paitent may not heal another; but it's worth a shot.
The bad parts of this disease are written in such a way as I felt all she was feeling, the lowest of the lows and the lonliness that comes in the middle of the night when you wake again for the 10th time in a night to go to the bathroom, but it is balanced with the good of seeing life go on; and not just go on, but thrive and flourish and most importantly heal.
Thank you Cahterine, your words blessed me.
From one IC patient to anotherReview Date: 2007-03-08
Gives IC patients hopeReview Date: 2006-11-05
HopeReview Date: 2006-08-05

Used price: $14.82

Good Suggestions for a little known conditionReview Date: 2008-11-10
Along the Healing PathReview Date: 2008-05-11
Good informationReview Date: 2008-03-27
I have done a few things that were recommended and have gotten so much better. I would say that it was worth the money spent and it's good to learn from someone who has been there before.
Exceptional.............Review Date: 2008-03-20
This book changed my life!Review Date: 2008-02-24

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Collectible price: $22.95

excellent book! !!!!!! Review Date: 2008-09-26
Recapture Your HealthReview Date: 2007-07-17
Like the three legged stool, the 3LS program contains three simple but sturdy elements (nutrition, exercise, and relaxation) that create a foundation for improved health. The nutrition section focuses primarily on minimizing damage caused by the high intake of refined foods in the modern diet. The authors promote a whole foods approach to nutrition that reduces and potentially eliminates all refined foods. This is very similar to the slow food philosophy that is gaining popularity.
Likewise, the exercise and relaxation portions of this program are not radical but are somewhat based in good common sense. Participants are expected to exercise twenty minutes three times a week of virtually any type of activity that gets them moving. Relaxation is guided through various types of formal relaxation exercises such as meditation or guided imagery completed for approximately twenty minutes twice a day.
Priceless Information For Lifelong Health and MaintenanceReview Date: 2007-04-24
Even if you think you know the information to wellness they present, "Recapture Your Health" is still a great reference to have linking many common and not so common ailments to the modern day interpretation of stress. Many of us have used one of their key elements at one time or another, but in putting all the pieces of the puzzle together you have a great weapon to use in the war against disease.
If you have not yet had to deal with a serious illness or condition, you can certainly can go a long way to prevent it, according to the book, and maintain quality your quality of life for the years to come.
Something for everyone,
A+
Deceptively simple yet an excellent resource!Review Date: 2008-02-05
But it is very well presented, brings up enough (but not too many) testimonials to be inspiring, it is simply written without complicated theories. The diet is easy to do and presented with lots of details. The proposed exercises are varied - very much along the lines of "do what works for you and do it at least 3 times a week". The Skilled Relaxation is nothing new if you are already familiar with the work of Benson, Cade, Pelletier, Kabatt-Zin, but it is presented here in a non-scholar way that is easy to understand, easy to implement and the book provides the health motivation to keep doing it. Understanding skilled relaxation without actually doing it twice a day is worthless. The text in this book makes you want to do it and to keep doing it.
I would highly recommend this book to anyone who is sick and hopeless - or anyone who wants to implement good life habits and prevent illness. I like the fact that it does not promise an instant cure for anything but rather proposes a way of living that supports physical, emotional and mental health. Well done!
The weakest point maybe is that it addresses general well being but only mentions in a rather weak way that people with long term diseases may have to be much more specific to completely heal. The proposed diet may not work for everyone, some people may need specific types of exercises and to avoid others, some types of meditation or biofeedback processes may be better than others for some conditions, etc.
However as an adjunct, Dr Stoll bulletin Board [..]) is filled with more specific information and the good doctor is also available to answer questions. A very generous proposition.
Ok - Got to go now and practice my skilled relaxation...
A Recipe For WellnessReview Date: 2007-06-06

Used price: $11.51

Very interesting.Review Date: 2005-09-23
People helping people.Review Date: 2007-08-24
AwakeningReview Date: 2006-08-05
She's still doing well!Review Date: 2005-09-09
There is Hope and From A Different Point of ViewReview Date: 2004-11-17
Valerie Farley
Catherine Simone's book, Awakening Through The Tears, is one that should not only be read by those who suffer from Interstitial Cystitis, but also by their family members. I am one of those "family members". My wife has been struggling with IC for the past year and we have felt as if we are totally alone. Nobody seemed to understand what it is like to live each day with IC. Simone's third book completes her series and certainly offers hope for those who have Interstitial Cystitis and to their family members. This book is a must for anyone who has IC or who knows someone who is suffering through this disease.
Kevin Farley

Used price: $10.74

Transformative HealingReview Date: 2008-08-28
A much-needed readReview Date: 2008-02-08
very enlightening and helpfulReview Date: 2007-12-07
A handbook for courage and meaningReview Date: 2007-11-18
Perhaps some will not pick this book up thinking, "I don't need to be healed." But it is beyond healing. HEALING is a gorgeous book about finding the richness, poetry and meaning in life. It's Bouvard's experience with illness that is the vehicle for her healing. However, none of us has a perfect life to live and we all have "something" whether it be illness, or loss, or disappointment...that is imperfect, yet defining to our lives. Despite these "somethings," we all have the potential to have meaningful lives rich with purpose. HEALING is Bouvard's journey beyond illness to that richness-and with her journey, she inspires us to find beauty and meaning in our own lives.
This Book Can Change Your Life--Whether You're Healthy or NotReview Date: 2007-12-19
For decades, Bouvard had been absorbed in a busy and very public life of travel, research, teaching and writing--a life she loved, a life that gave her her sense of her successful self, and one she simply refused to surrender. She fought valiantly against the reality of her diminishing energies and capacities. She found her illness demeaning, an embarrassing weakness, a symbol of her failure both as a professional and as a person. As she became less active, less vocal, she felt her colleagues avoiding eye contact and avoiding her altogether. She began to feel invisible, "an unwanted outsider," no longer a part of the illustrious team of academicians that had been her life for so long. As her condition limited her more and more she lived "...in a turbulence of outrage, fear, and sorrow..." over her wildly changing circumstances.
When her illness at last became impossible to ignore, Bouvard spent years going from doctor to doctor, enduring painful procedures. Accurately diagnosed at last, she learned she had a chronic illness called interstitial cystitis, an inflammation and deterioration of the bladder lining that affects not just one area of the body but the body in its entirety. After a time, she would also develop fibromyalgia, again a miserable chronic illness involving muscle pain, severe fatigue and disturbed nightly sleep.
But in spite of her depleted stamina, Bouvard refused to cancel a previously planned arduous journey to Argentina to work with the Mothers of the Plaza de Mayo, whose children had disappeared and/or suffered torture at the hands of the country's brutally suppressive government. From these exceptional and courageous women, Bouvard learned that they assuaged their grief over the loss of their children and the brutal tyranny they lived with daily by banding together, by sharing their stories, by actively rising up against their oppressors, by not keeping silent. In time, she realized that she too would find healing only by speaking the truth of her increasing physical frailty, her acute and unrelenting pain.
The Mothers, who possessed a profound sense of caring for one another and a dedication to righting the senseless and horrific injustices that endangered them daily, became Bouvard's teachers. Her essential values began to change. Things she once considered important lost their significance. She stopped rushing about, stopped feeling the familiar competitive drives she had known all her life. She learned from them how to listen, how to hear and see in depth what was going on around her; she learned to pay attention, to give herself time to take things in and reflect.
However, these changes happened only gradually. She admits that it took her a long time to come to terms with her chronic illness. She writes:
I didn't realize this was the beginning of learning a new culture or that I would have to create a new language that would reflect my reality. Nor was I aware of one of the sources of my deep discomfort: that to become ill in this society means having the body, spirit, and mind severed. How could I speak to the people around me about my fear and anxiety, how could I speak to the self that was changing, when I was unable to find the words and had no frame of reference?
Having found the language to speak her truth, Ms. Bouvard was faced with giving up the certainties of her old career. She needed to learn to navigate her life without the familiar maps and landscapes of previous years. She began to trust that ideas would come in new ways, that her career would follow a different but equally creative path. She wanted to write only about ideas that fired her soul; she wanted to write not with the objectivity of research but as though she was addressing each reader personally.
She became excited as she felt herself and her life changing drastically. She began to keep a journal and as it became filled with her writings, and with cards and messages from friends, she realized she was neither invisible nor alone...no longer "an outsider" but very much a thriving human being, more connected to God and to herself than she had ever been. "Chronic illness," she writes, "has given me the opportunity to reassess my life, to decide on how I will live, what I hope to accomplish and what is important to me."
We all have problems that are difficult to confront, difficult to come to terms with. This is a book that can change the lives of the healthy as well as those struggling with illness. I cannot recommend it highly enough.
by Duffie Bart
for Story Circle Book Reviews
reviewing books by, for, and about women


An excellent resource for IC physicians & clinical staffReview Date: 1998-10-29
Of particular note is the insightful chapter "The Causes and Treatment of Pain in Interstitial Cystitis" written by Daniel Brookoff, MD, which has helped us convey the often underestimated need for pain management.
This book is a cornerstone to any IC library, including our own at the IC Network. Very well done and much appreciated by the patient community.


A MUST for PARTNERSReview Date: 2008-07-15


Be Careful Review Date: 2007-04-28
THANK YOU, Ms. Willis!Review Date: 2006-11-20
Basically she states what we consume is too acidic which disturbs the lining of the bladder. She charts good and bad foods as well as good and bad habits that contribute to IC (example: Smoking=BAD, Massage=GOOD).
I have followed the basic "High Ph" philosophy in this book and took Elmiron for a year now and am nearly symptom free. Although I think the Elmiron has helped more than anything, this book is a must have if you have IC. I referred to it on a regular basis.
Want to get better?Review Date: 2006-09-02
Hope and confidence !Review Date: 2006-11-06
It is packed with explanation about the causes of IC, the effects of imbalance between alkaline and acid in the body, tips in the events of flares, lists of food to avoid/to eat, list of minerals, recipes,etc...the author explains how it is essential to retrieve a balance between alkaline and acid in the body, but is careful not to scare the reader. This book gives hope and confidence that we can get rid off IC and teaches us how to protect our precious health in the long-term too! (and protect the health of our loved ones too!)
If you suffer from IC, or know someone who does, then this is the book to get!
with best wishes to all other(soon "to be former") IC patients, and a big thank you to Amrit Willis for giving me so much hope !
Waste of timeReview Date: 2006-03-31
Following the advice of this book wasted a lot of my precious time in pain. I remember that time being horrific, I was peeing on strips of paper and I was in a maze of what was causing my burning every time I peed and why I was peeing every few minutes I also was sure I had a yeast infection, even though my cultures came back negative I felt itching and irritation.
I went to a pelvic floor physical therapist and within a few treatments I was not peeing often and it did not burn. cured. My constricted tissues were causing a hystamine reaction. I now eat everything I want and don't take any special supplements or anything like that. This book was a waste of time for me. Also there is no medical proof behind her alkaline/acid theory.

Used price: $13.50

Happy to see MD with open mind about non-traditional therapiesReview Date: 2008-10-30
Review of "Maybe it IS All in Your Head"Review Date: 2008-08-26
A fascinating new approach!Review Date: 2008-08-18
Great book written in laymen's termsReview Date: 2008-08-12
J.B.
MT/ASCP
Medical Technologist
American Society of Clinical Pathologists
A Doctor Who Listens to His PatientsReview Date: 2008-08-13
Unlike many physican/authors, Doctor Roby manages to explain these complex physiologic processes in an engaging and informative manner, without either losing his readers in a tangle of specialized jargon or talking down to them.
I gave this book five stars because the author doesn't simply suggest a healthy diet, modest exercise, and stress reduction like ninety-five per cent of all medical books written on chronic illnesses resistant to current therapies; it offers a physiologic explanation for disease processes and a medical approach to combat them.
This is a fascinating book. It should be especially interesting to anybody who has ever allowed themselves to be convinced that his or her physical misery is somehow the product of a disordered imagination.

Used price: $19.53

Good BookReview Date: 2008-07-15
Very helpful resource, however....Review Date: 2002-06-22
A Self - Help Encyclopedia for IC patients!Review Date: 2001-05-25
The self help chapter offered the most useful discussions we've ever read on managing urgency & frequency. The pain management strategies were exceptional. Their discussion of sex, menopause & pregnancy is outstanding. This book will light the way for patients entering perimenopause. The hormone replacement discussion is the best I've ever seen in relation to IC. The chapter on pregnancy will become a bible for patients contemplating motherhood. From medication to physiology, prenatal vitamins to breastfeeding, this chapter is a much needed addition to the IC community. Bravo!
From the husbands perspective, the chapter on Living with IC - A Spouse's Perspective confronts issues that so many couples and families grapple with daily. From adjusting expectations to understanding how IC will change family dynamics on a day to day basis, this chapter will be read aloud, in bedrooms and kitchens, in many IC homes.
"Patient to Patient: Managing Interstitial Cystitis & Related Conditions." is the result of years of wisdom and work by this remarkable husband and wife team. We give it our highest rating. Five stars! It is far above the other self help books out there today! - Jill Osborne, MA
Covers A Lot of MaterialReview Date: 2006-04-06
This book really covers a lot of useful material for someone with IC. Medical issues, diet suggestions, and information for spouses and family are all covered. I particularly liked the chapter on environmental and chemical sensitivities. There are many of us with IC who can and have made great strides in improving our condition by making a few well chosen changes to our environment. This and many other helpful ideas in this book also lead into one of the authors' main themes - taking charge of this disorder and regaining our confidence in ourselves.
Also close to my heart, as a yoga teacher for people with IC, was "Chapter 3 - Reclaiming Comfort in Your Body" and the illustration on the preceding page, "Pain Pattern of IC". Gaye and Andrew's approach of gentle, supported stretches and a "...conservative approach to exercise..." is a very helpful philosophy for anyone with IC or who is in the middle of a flare-up. It also points out that we don't necessarily have to suffer with secondary sources of pain if we pay attention to some of the little details of our body.
Clear and constructiveReview Date: 2003-06-04
Even if you are not an IC patient but love one, I also think this is a must read. It will give you a much better idea of what your loved one has or is or will go through. My husband is reading it now, and my mom is reading it after him.
I will most definitely try some of the things she talks about in the book when it comes to having a toxic body and cleansing it. At this point I'll do anything to get rid of the pain. I have found (like mentioned in this book) that drinking some water with a half teaspoon of baking soda in it actually helps! I will most certainly try other things she had to offer!