Ehlers-Danlos-Syndrome Books

This book has helpful information about EDS and is recommended reading for patients with EDS.

This is a very good book that gives information for finding all kinds of sources that have information about EDS. It is more of an information resource locator than a text book.

I have Ehlers-Danlos Syndrome (EDS), so I purchased this book as soon as it came out. What a waste of money! It's chock full of factual errors, outdated data, and incorrect references.

In one section the book states that there are 10 types of EDS. In another place, it refers to the 6 types of EDS. In truth, it was believed that there were 10 types, but the Nosology in 1997 reclassified the EDS types, reducing the total to 6.

The book provides resources for EDS with incorrect websites and mailing addresses. Even these references are not consistent within the book. In one place the address is right and in another it uses an address that hasn't been used in a decade. No attempt was made by the authors to check their sources for accuracy.

There is a glossary of medical terms in the book, but this is the same glossary that appears every other "The Official Patient's Sourcebook". The terms included have no relationship to EDS at all.

Much of the book includes a listing of websites and instructions on how to do research online. If you know how to use a search engine, you don't need the book to find these sites. If you don't use the Internet, the book won't help.

In my opinion, the authors made one master sourcebook, then copied it for every disease and disorder known to man. Little effort was made to modify the books beyond the name of the condition. No matter what ails you, they figure they can get your money at least once.

This CD consists of information from various government health- related websites, as well as articles, abstracts, and links to internet sites. However, since the websites are presented in their entiretly the majority of the information has nothing to do with EDS. Although the disk is searchable, the effect is much like cruising the web, you have to go through a lot or irrelevant information to get to a few nuggets of useful information. Most of the useful information I had already located through browser searches or links from EDS websites. I would not recommend this as a good value for the money.

Nothing more than a list of web sites for people to search. Save your money and google it.