Disability-and-Health Books
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36 Conversations Create a Mosaic of Chronic PainReview Date: 2003-05-27
The Truth About Chronic Pain by RosenfeldReview Date: 2003-09-16
chronic pain cycles and the actions required to manage
these conditions over the long term. There are many important
interviews with both patients and physicians which document
typical experiences and valuable corrective steps to combat
pain on an ongoing basis. This work would be a valuable
addition to any personal medical library.
Interesting, but not usefulReview Date: 2003-08-18
Telling but LackingReview Date: 2004-03-17
should be required reading in med. schoolReview Date: 2003-09-10

Used price: $42.00

Do not use a cannon to kill a mosquito...Review Date: 2007-06-11
an unbiased textbook that politicians who care about health care should readReview Date: 2006-06-24
A BRILLIANTLY Written Classic!!Review Date: 2006-06-18
Smart book, clear explanations, very comprehensive.Review Date: 2006-06-18
Great for the public health nurse!Review Date: 2005-09-11

Used price: $0.41

Great Resource!Review Date: 2007-08-02
Good for wheelers but flimsy for the slow walkersReview Date: 2007-06-11
Good, but outdated informationReview Date: 2005-09-10
Fortunately, there is a new edition of this book, published earlier in the year. I haven't purchased it yet, but intend to. With current information, if the new edition is as comprehensive as this one, it would warrant 5 stars. This is a book for anyone, young or old, who happens to live with a disability -- even a temporary one -- but doesn't intend to be defined by it. Get out and travel!
It Helped UsReview Date: 2002-07-13
The cruise chapter was very helpful to me. I just figured I could call up a travel agent and book a cruise with a handicapped cabin. I'm glad I read the book before I made that mistake. There is also a very helpful chapter about choosing a travel agent and how to travel on an airplane with a wheelchair.
We just got back from our first cruise and it was great. I wouldn't have been able to do it without this book. If you are even only thinking about travel, I urge you to read this book. We are already planning our next trip.
Second Edition Worth The MoneyReview Date: 2005-09-15
The cruise chapter is really enlarged and there seems to be new information in the other chapters too. There is also a new chapter about traveling with children, and it seems good, but it really didn’t apply to me.
I would definitely recommend the second edition of the book...even if you bought the first one. It’s important to keep current with the laws and learn about new resources, and I think that the second edition does a very good job of that.

Used price: $1.83

been thereReview Date: 2003-07-29
The Nature of ParenthoodReview Date: 2002-10-28
I do not recommend "Choosing Naia"Review Date: 2003-02-26
A couple must make a difficult choice.Review Date: 2003-01-19
Investigative reporter Mitchell Zuckoff spent hundreds of hours with Tierney and Greg, and the result is "Choosing Naia," a book that began as a series of articles in the Boston Globe. This book is not only the story of a couple's arduous journey, but it is also an eye-opening look at the history of Down syndrome and a good explanation for the layman of what such a diagnosis means to a child and his parents.
Zuckoff's conversational style makes "Choosing Naia" flow smoothly. Throughout the book, the author provides valuable information on such topics as genetic testing and counseling, early intervention for children with Down syndrome, and the importance of networking in order to get the most valuable information and assistance for your child. Another factor that makes "Choosing Naia" stand out is its unflinching honesty. It is a tribute to the Fairchilds that they allowed their doubts, fears and uncertainties to be recorded for posterity. They come across as vulnerable, yet strong and determined, real people who have decided to meet a difficult challenge.
I highly recommend this touching and informative book. "Choosing Naia" reminds us that in an age of amazing technology and prenatal testing, we are privy to information that may make our lives more complicated than ever before.
The Other Choice in pro-choiceReview Date: 2002-12-27
In these situations, many Americans, including those who declare themselves to be pro-choice, don't see a pregnancy as a "choice": the woman/couple should abort a child with a condition such as Down syndrome or spinal bifida.
Mitchell Zuckoff's tale is one of a couple who discover that their long-awaited child not only has a hole in her tiny heart, but also has Down syndrome. Zuckoff takes us through Greg and Tierney Fairchild's weeks of agony as they explore the decision to continue Tierney's pregnancy and the months following their choice.
Family members urge them to consider both termination and continuance, while doctors and counselors strive to remain neutral. Meanwhile, Greg and Tierney wrestle with the questions that would inform our own opinions: would they be able to have other children, knowing that their first-born may require a great deal of time, money, and energy? Were they willing to fight discrimination and ignorance for their child's life?
As the book's title makes clear, the couple chooses to continue the pregnancy and take the future as it comes. Unfortunately, it comes with much more heartache. Zuckoff recounts the early health difficulties that plagued baby Naia's life, as well as her parents's introductions to the social challenges she will face.
I applaud Zuckoff's work on this book. While the reader is aware that none of the characters are telling the story, the journalist also does not appear in the tale. He effectively minimizes the space he occupies on the edges of the page.
Zuckoff strives to tell a complete story in every chapter. After opening with a scene from the family, he explores background information about prenatal testing, the history of mental retardation in the US, and the biology of Down syndrome. The reader is exposed to much of the same information the Fairchilds sought out during the decision-making period. While the author does not become over-technical, at times he fails to make a smooth transition between the Fairchilds and the other information.
What Zuckoff does not tackle is the Fairchilds's choice in the abstract. For those of us who call ourselves pro-choice, what does it mean when a woman/couple makes the "wrong" choice? Are we willing to support women/couples who choose to have a child with a debilitating condition, possibly suffering from profound mental retardation?
However, this is a small criticism. If his focus was on one particular couple, then these wider issues have limited value in the narrative. Greg and Tierney face this issue on a small scale when family members gently urge her to consider termination.
The tale is one of heartbreak, triumph, resilience, and overwhelming love. For those who enjoy it, I recommend both Martha Beck's "Expecting Adam" (which covers the same ground with a more mystical spin) and Rayna Rapp's "Testing Women, Testing the Fetus" (which covers the ethical and social issues of amniocentesis).

Used price: $12.47

judith BluestoneReview Date: 2008-12-16
more than just a bookReview Date: 2007-10-26
My son has changed so drastically within the last five months. I am very faithful to the exercises because I see the results which include being able to hear and see at the same time, being able to smell, being able to process sequences of sounds, being able to follow more than two commands, being able to use fingers on one hand without the other hand moving, becoming more social etc etc etc (My son is six years old).
The book comes with exercises to try so you can get an idea of what a full Handle program would be like.
I would like to add that my husband has a PhD in physics and works for NASA. He is very research orientated but when it comes to the Handle program, he just says "whatever you are doing, just keep going!"
Pseudoscience at its best!Review Date: 2006-07-29
My "favorite" story in "The Fabric of Autism" is about an autistic and non-verbal girl named Christine. Judith claims that the girl began to speak after a few months of "working" on her feet. Bluestones rational for this miraculous event is that the girl "allowed herself to open to her sensory vulnerabilities in order to be opened to express her sensibilities." Now where is the science in that?
I'm a total convert to the HANDLE method Review Date: 2006-12-27
Common ThreadReview Date: 2005-10-18
Bluestone does a brilliant job of combining a personal account with clinical research. When you get right down to it, all people have some common traits/aspects/behaviors with their a/A counterparts. The common thread is quite strong; it comes through in the beautiful, bright primary colors that make up the a/A enigma puzzle. Bluestone's research does a lot to unravel the enigma by providing logical explanations for sensory issues and behavioral responses to same.
I think this book deserves a place of honor among all professionals, parents and lay people. We all need this book!

Used price: $5.00

Recommended readingReview Date: 2007-08-07
If Spike and Bo can do it I can do it too!Review Date: 2006-06-16
RC
Okay for BeginnersReview Date: 2002-06-03
As an avid reader of Books on Diabetes, I found it difficult to follow. The writers seemed disoriented and got off track often.
A Positive ReadReview Date: 2002-06-11
Uplifting & Positive Book Written by Two Teens w/ DiabetesReview Date: 2002-08-31
I really enjoyed reading about diabetes from the viewpoint of the person with the disease. Spike and Bo provide practical suggestions on how to integrate diabetes management in a variety of settings: school, surfing, eating out, traving the globe, driving, etc.

Used price: $0.01
Collectible price: $34.95

Autobiography of A Long Term ALS Survivor Review Date: 2008-07-01
Even this affluent family couldn't afford to pay for round-the-clock nursing care, so they cobbled together health care aides, family and volunteers. If Horn had just given up and gone into a nursing home, his expenses would have been covered. Wanting to live in the world, with his wife, friends, colleagues and grown children, he paid a huge financial price, and his wife had to work the equivalent of two full-time jobs, one at her day job and the other job at night, as her husband's caretaker.
Is it really that hard for society to put a program together that will keep adults at home, if that's where they want to stay, after the onset of a life-threatening illness or disability? Much to his credit, Horn doesn't spend much time dwelling on the negative, instead revealing a strange zest for life, a willingness to go on living, when most of us would have given up.
A quick web search revealed that Horn died in 2002, living an amazing 14 years with a disease that usually results in death within 5 years. After reading his book, he comes across as the kind of man you wish you'd had a chance to know in life. Horn writes about a life lived with few regrets, and maybe that's the best we can all hope for, at the end of our lives.
In the opening pages, the author describes himself as a man who was, until his mid-forties, 'a very normal person and yet, at the same time, a somewhat abnormal one. I was normal in the sense that that there was nothing particularly unusual about me, no involvement in anything, positive or negative, unique or spectacular.' I am certain that those who knew and loved Mr. Horn would consider him to be a man who lived an unusual, spectacular and quite memorable life.
A Must Read!Review Date: 2006-01-12
Life ChangingReview Date: 1998-09-16
An inspirational, heartwarming book for everyone.Review Date: 1997-08-08
Superb book detailing what it's like to have ALSReview Date: 1997-07-25

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Excellent Product to Reduce Blood Pressure & StressReview Date: 2008-09-18
Weather you have high blood pressure or are just stressed, in just about 15 minutes a day, you will be totally relaxed. I wasnt' sure about buying one (they are $250 to $300), but it had a no excuses money back guarantee, plus my friend was sold. So I thought what the heck, give it a try. I ordered it from a place called The Caregiver Partnership and decided to call them first with questions. They seemed very knowledgeable about Resperate (and claimed to have used it personally). I would recommend checking them out as an option.
The manufacturer of Resperate claims to have proof postive that it works - clinically based on something like 10 big studies.
My recommendation is if you have high blood pressure or are just stressed, give it a try for yourself. You have nothing to lose.
Caregiving 101 - A Useful GuideReview Date: 2007-02-15
The "Unspeakable" made "Speakable"Review Date: 2000-11-28
Extremely useful and informativeReview Date: 2000-11-22
confused even moreReview Date: 2000-08-07

Used price: $8.46

Great text AND great pictures!Review Date: 2008-09-16
Wonderful-Really helps to erase many dental visit fears! Review Date: 2007-10-05
Very informative!Review Date: 2007-09-26
A visit to the dentist isn't so scarryReview Date: 2007-09-26
Great Book!Review Date: 2007-08-29

Used price: $3.00

A little bit boringReview Date: 2000-02-03
Jill Kenmont ~As we know her nowReview Date: 2007-11-22
Remarkable story of hopeReview Date: 2001-02-28
This is an amazing and memorable piece of work and will be cherished by those who believe in the immortality and infallibility of the human spirit.
Still worth a read after all these yearsReview Date: 2006-05-10
Ms. Kinmont chose to live life to the best of her ability and work around her disability rather than let it define her capabilities, and in the process opened doors and gained recognition of the the needs of other handicapped people.
Recommend this biography as well as the Life magazine article, still available through libraries. Much better than the movie, which was unfortunately given the Hollywood treatment and fictionalized.
The Other Side of the MountainReview Date: 2004-05-18
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