Chronic-Disease Books
Related Subjects: CJD Chronic-Fatigue-Syndrome Chronic-Granulomatous-Disease Chronic-Obstructive-Pulmonary-Disease Circulatory-Disorders Circumcision Cirrhosis Clap Claudication Cleaning-Products Cleft-Lip-and-Palate Clinical-Trials Cloning Clonorchiasis Club-Drugs Cluster-Headache Cocaine-Abuse Coccidioidomycosis Cold-Common Cold-Sore
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The Thyroid SolutionReview Date: 2008-07-12
The Thyroid SolutionReview Date: 2008-06-16
great book - very helpfulReview Date: 2008-06-09
Excellent bookReview Date: 2008-05-17
thyroid solutionReview Date: 2008-07-29

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Deeper AppreciationReview Date: 2003-05-14
Since the disease is hereditary, should those with a history of Huntington's in their family get tested for the gene that causes the disease? Should those with the disease have children knowing that they could pass the disease along to the next generation? When, if ever, is it time for the person with the disease to move to a nursing home?
I didn't know anything about Huntington's before I read Leal's book. After reading it, I have a deep appreciation for the struggles that families face after a positive diagnosis.
If you are looking for a book about Huntington's that doesn't gloss over the hard parts of life and yet at the same time shows you what faces of courage, hope and faith can look like during trials, then this book is for you.
HDReview Date: 2003-03-19
If You're Interested in Huntington's, Read This Book.Review Date: 2003-03-21
As a healthcare professional I've worked with a few hundred families touched by HD over the last 17 years. Among those families, this book "Faces..." is known as a tool for hope, support and inspiration. I have purchased many copies of this book over the last few years and given it as a gift to families.
The positive reviews here clearly reflect the overwhelming praise that this book reliably receives from folks touched by HD.
I respect the views of the folks who've posted those negative comments. HD is the worst damn disease that can touch a family and it manifests itself in unlimited ways. And everyone handles it in their own unique way. However, it would be sad if a family looking for a source of hope like this one turned away from it because of those comments. The overwhelming percentage of folks who've read this book talk about it as an important source of hope and support for themselves.
Read it and see for yourself!
One of the best books I've ever read on the subjectReview Date: 2003-03-09
I was amazed to read the negative review. I understand that not everyone sees the glass half full versus the 99% empty the person who reviewed the book sees. But the review seemed more an attack on the author's character rather than on her work. I feel really sad that someone is so bitter they can't see anything but ugliness no matter where they look. Makes me wonder did they really read the book since in the book I read had stories about suicide, abuse, juvenile Huntington's, death and other real effects of this devastating disease. When I read the review I wondered why this person doesn't write their own book filled with their 42 years of experience.
Faces of Huntington's is one of those books I know I will go back to many times over the years and will recommend to others.
Well written and full of informationReview Date: 2003-03-09
This was a book that needed to be written.
For the first time I was able to read stories of other people dealing with this disease,like I am.
It is a book that is very easy to read.
Not all stories are sad , and that was encouraging.
You will find ways to handle your problems by reading how others have.
I found my self re-reading the book many times , its comforting.

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Just Fine is Just Excellent!Review Date: 2008-02-24
This amazing book is the best of the bunch...Review Date: 2006-06-27
I have read just about every book available on the topic of coping with chronic illness and pain. None of them come close to this one by Sveilich. She seems to know the subject quite well and presents unique resources from experts and professionals in the field.
Of course, the best experts are the people who actually live with chronic health disorders and they are respresented throughout this book. The profiles are amazing. I saw my story in just about all of the 55 profiles included. I also found some great coping tools to apply to my own life.
Good insights and coping tips were offered by psychologists as well as physicians. The author also discusses mind-body medicine and complementary approaches as well as traditional medicine. From Zen to Zoloft and everything in-between... this book has it all.
My only remaining question is, why isn't JUST FINE on the New York Bestseller list?
It should be.
"Just Fine": helps transform the emotional pain of concealed chronic conditions with wisdom, resources, and wit!Review Date: 2006-07-15
Chronic Fatigue (CFIDS) has been my challenge and teacher since my symptoms began more than 30 years ago. JUST FINE, written beautifully by a therapist surviving her own chronic illnesses, says everything I needed to know THEN when little was known and we were told it was a "psychological problem". The book reassures me - even NOW when we recently found out there are at least 5 genetic markers (see the CDC website) - that I am and have been doing MORE than "Just Fine" with the "luck of the draw" biologically & with the life circumstances that may have contributed to triggering my illness.
The photos and narratives of "people with..." function like a "support group in a book" and I KNOW that many readers may not have a group available or be able to reach one because of the limits often imposed by the illnesses themselves. I appreciate the participants' courage in speaking about often stigmatized experiences, while also knowing many of us are longing to be asked by someone who is truly willing to hear us. We continually search for language that can describe our often fluctuating experience: Carol Sveilich and her interviewees have done just that!
I have given this book to clients, friends and family. I look forward to any more writing Sveilich will do in the future, as she clearly has more to say that would be worthwhile to read - to "listen with your eyes".
An Great Book about Living with Concealed Illness!Review Date: 2007-11-22
The book discusses hidden health disorders in a unique way because the author not only offers insights and coping tips offered from physicians and psychologists, including traditional medicine and mind-body medicine. She also has included profiles of people living with a hidden health disorder and she lets them tell their story in their own words, along with their photographs.
What I really liked about the book was being educated about other types of concealed illnesses, and at the same time, how I saw myself in many of the stories. There were common threads of emotions from these people living double lives.
Some of the topics from the book included how to deal with canceling plans, learning how to answer people when they ask how you are, being envious of other people in good health, sacrificing personal goals, making adjustments, and how to respond to people when they question the severity of your symptoms.
I was surprised and relieved to see the author even dealt with the subject of sex with a chronic illness, which I never saw explored before in a book.
This book definitely made me feel not so alone with my double life. It was very comforting and it taught me how to look at people differently, because someone who is smiling in the office might be living with a hidden health disorder like me.
Liked it Review Date: 2007-03-19

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Fibromyalcia Review Date: 2008-06-20
Thank you,
Cindy Connor
Wonderful MaterialReview Date: 2007-10-22
Fibromyalgia Advocate Review Date: 2007-04-10
This book made a huge differenceReview Date: 2007-08-06
Definitely give this book a read and her other book. Check out my reviews for other helpful FMS books.
Update 01/08: This book is still one of the best out there. I use self-TPT still and plan on seeking a practitioner.
YOU MUST OWN THIS BOOKReview Date: 2007-03-09

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Answers for Polio survivorsReview Date: 2008-04-07
Very EnlighteningReview Date: 2008-01-14
The Polio PardoxReview Date: 2007-12-01
Had Polio... PPS nowReview Date: 2007-07-29
Answers at lastReview Date: 2008-05-06

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A great new addition to books on transplantationReview Date: 2005-10-09
From the American Journal of Kidney DiseasesReview Date: 2004-07-20
The struggle for life: a psychological perspective of kidney disease and transplantation: Authors: Lyndsay S. Baines and Rahul M. Jindal Publisher: Praeger
Colin Baigent, BM BCh, MA, MSc, Reader in Clinical Epidemiology a [MEDLINE LOOKUP]
In the preface to this book, the authors challenge the reader to approach the subject matter with a fresh perspective. There is, they say, no place for the quantitative tradition when assessing psychological problems among patients with kidney disease. Complex emotional states defy classification by reference to quantitative psychology, and must instead be understood in the context of each particular patient's worldview. That sort of understanding comes only from talking to patients, and not from getting them to fill in questionnaires. It was in order to make this point forcefully that the authors, who run a psychosocial support service for kidney patients in Glasgow, Scotland, decided to write this book describing their own practical experience. They hoped that, by bridging the gap between psychotherapeutic and clinical services, others would try to create similar types of support for their own patients. Will they succeed?
Since the target audience is transplantation team members, the book begins with useful background material, including an outline of psychotherapeutic theory as it relates to chronic illness, and a short section on psychoanalysis. After this, however, the authors hit their stride, and we have chapters on a wide range of "human dilemmas," among them medical noncompliance, grief, abnormal body self-image, substance abuse, debt, depression, anxiety, and sexual problems. In each area, the authors explain why, in relation to these problems, dialysis and transplant patients ought to be considered sui generis and argue that much of the related psychological literature on other chronic illness (eg, cancer) simply misses the point. They explain, for example, that transplant patients frequently see themselves as the recipient of a "gift," and feel pressure from within to do something "special" with their lives. This aspiration is difficult enough if we are healthy, but many such patients have experienced years of poor health, perhaps even reduced cognition, and the inevitable result includes a range of consequences from depression and reduced self esteem, through to relationship difficulties and suicide. Each chapter gives us several vignettes from the authors' own experiences, together with a transcript describing how they tried to help, often with some success. Even as one steeped in the so-called quantitative tradition, I was impressed by the skill involved in trying to realign patients' expectations of their postmorbid lives, or in helping them to come to terms with their limitations, or in helping to ease their feelings of isolation. For me, these accounts were the most worthwhile part of the book: they remind us, above all, that health professionals have first of all to be human beings to connect with patients' experience of illness.
In spite of my enjoyment of much of the book, however, I fear it will be less widely read than it should be. Quite simply, for a book that aims to win over clinicians to the cause of psychotherapy, it seems to be too long. Busy physicians, surgeons, and other health professionals who are chronically short of time may lose patience with much of the supporting quantitative material on psychotherapeutic research and the sections on theory. It is a pity that the authors did not stick to their guns about the value of the oral tradition in this context. For the selective reader, however, reading of the transcripts of the psychotherapist's art will be rewarded by a rare insight into the emotional world of transplant or dialysis patients. In that respect, the authors may prompt others to explore how such a service might be provided in their own practice, and this can only be a good thing for present and future patients.
Publishing and Reprint Information TOP
aUniversity of Oxford, Clinical Trial Service Unit, Harkness Building, Radcliffe Infirmary, Oxford, United Kingdom UK
Copyright © 2004 by National Kidney Foundation, Inc.
doi: 10.1053/j.ajkd.2004.05.015
A good additionReview Date: 2004-05-21
Breaks new groundReview Date: 2004-03-10
This book may be useful for patients and support groups as well as physicians, surgeons and perhaps nurses.
I found the transcripts interesting as we deal with similar patients in my work as a transplant coordinator. I congratulate the authors for this work.
An interesting workReview Date: 2004-02-20

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An excellent, interesting book on healthy livingReview Date: 2008-05-16
A Great Motivator to Improve Your Lifestyle!Review Date: 2008-04-02
What's so refreshing about this book is that it is NOT a diet book and is NOT about weight loss. Weight loss is just a happy side effect of a healthy lifestyle. The focus of the book is improving your health by making what really are pretty simple lifestyle changes. When you learn about what healthy and unhealthy foods do to your body, it really motivates you to improve the way you are eating. The same is true for the discussion of exercise and what it does for the cardiovascular and other systems.
Yes, we all know fruits and veggies are good for us, but I look at them in a whole new way now and you will too if you read this book!
Full of helpful informationReview Date: 2007-10-08
Beyond My ExpectationsReview Date: 2007-08-15
The Culprit and The CureReview Date: 2007-07-16
To this end, this book examines various aspects of healthy living as studied in various nutrition, physical fitness, and psychological case studies as well as through real life examples. The author then translates this information into simple, inexpensive, realistic solutions for real people wanting to undertake permanent healthy lifestyle changes. This book also features many easy to understand charts and various interactive exercises to help the reader tailor his or her current lifestyle to become healthier.
The Culprit and the Cure is a unique guide to health as it examines the need for healthy lifestyle changes in nutrition and exercise. This book does not promote fast weight loss by undertaking fad diets. Instead, this book looks at the greater benefits of healthy living and more realistic aspects of making lifestyle changes to achieve a healthier way of life.


DETECTA FACILMENTEReview Date: 2005-10-06
ESTAMOS VIVIENDO EN LAReview Date: 2003-04-19
Primero, EL SIDA
Luego, EL ÉBOLA
AHORA, LA PULMONÍA ATÍPICA
Pero todo el tiempo, como agazapado en la oscuridad, EL SFC (Sindrome de Fatiga Crónica ), que daña tanto PORQUE NO SE DETECTA FÁCILMENTE...Y QUE CRECE DÍA POR DIA COMO TODO LOS ORIGINADO POR UN VIRUS! Es el caso de la Pulmonía Atípica, que se confunde con una bronquitis o una gripa fuerte...
En el caso de la Fatiga Crónica, tenemos el recurso de ESTE ESTUPENDO LIBRO QUE NOS MUESTRA LOS SÍNTOMAS Y EL CAMINO A SEGUIR..
Depende de uno querer protegerse o no
SIENDO UN VIRUS EL QUE MOTIVA ESTE SINDROME,Review Date: 2003-04-13
Es de vida o muerte leer este libro para detectar si tenemos el Epstein Barr antes de que comience a dar síntomas !
Mi hermano menor se fue al borde deReview Date: 2003-04-12
¡No hay mal que por bien no venga !
En Emergencias lo atendieron y mientras estaba en el hospital, le descubrieron la Fagiga Crónica..
Es muy importante leer este libro para poder identificarla y combatirla antes que las cosas pasen a mayores...
A VECES SOSPECHO QUE, COMO EN EL CASO DEReview Date: 2003-04-28
De otra manera,¿CÓMO TE EXPLICAS LA EPIDEMIA DE EPIDEMIAS?
Y LA FASTIGA CRONICA ESTA CAUSADA POR EL VIRUS DE EPSTEIN BARR... Y NO EXISTIA...
Pero esa LA PUEDES DETECTAR Y COMBATIR..NO DEJES QUE SE TE CONFUNDA CON DEPRESION, O QUE UN MEDICO IGNORANTE LA CALIFIQUE COMO TAL...
PREVENTE !

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Chronically HappyReview Date: 2007-12-21
Cheerful, but nothing new.Review Date: 2007-06-11
Inspirational!!!Review Date: 2003-06-14
A must read especially for those with Chronic Kidney DiseaseReview Date: 2003-06-20
Sincere, practical advice, a motivational bookReview Date: 2005-07-19
I especially enjoyed her chapter on overcoming the "Damaged Goods Syndrome". A tendency for those with Chronic Illness is to have negative thoughts and self-esteem challenges when we compare ourselves to other more healthy people. I often find myself viewing myself as "not good enough" and am frustrated by how disabling my illness can be in acheiving my goals.
While the mind can work destructively, it can also be employed to build joy, humor, and a positive attitude that helps achieve goals. Learning to identify and work through cognitive distortions gives you a new lens in which to see your life.
Hartwell quote in her book Helen Keller as saying "We could never learn to be brave and patient, if there were only joy in the world."

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Deceptively simple yet an excellent resource!Review Date: 2008-02-05
But it is very well presented, brings up enough (but not too many) testimonials to be inspiring, it is simply written without complicated theories. The diet is easy to do and presented with lots of details. The proposed exercises are varied - very much along the lines of "do what works for you and do it at least 3 times a week". The Skilled Relaxation is nothing new if you are already familiar with the work of Benson, Cade, Pelletier, Kabatt-Zin, but it is presented here in a non-scholar way that is easy to understand, easy to implement and the book provides the health motivation to keep doing it. Understanding skilled relaxation without actually doing it twice a day is worthless. The text in this book makes you want to do it and to keep doing it.
I would highly recommend this book to anyone who is sick and hopeless - or anyone who wants to implement good life habits and prevent illness. I like the fact that it does not promise an instant cure for anything but rather proposes a way of living that supports physical, emotional and mental health. Well done!
The weakest point maybe is that it addresses general well being but only mentions in a rather weak way that people with long term diseases may have to be much more specific to completely heal. The proposed diet may not work for everyone, some people may need specific types of exercises and to avoid others, some types of meditation or biofeedback processes may be better than others for some conditions, etc.
However as an adjunct, Dr Stoll bulletin Board [..]) is filled with more specific information and the good doctor is also available to answer questions. A very generous proposition.
Ok - Got to go now and practice my skilled relaxation...
Recapture Your HealthReview Date: 2007-07-17
Like the three legged stool, the 3LS program contains three simple but sturdy elements (nutrition, exercise, and relaxation) that create a foundation for improved health. The nutrition section focuses primarily on minimizing damage caused by the high intake of refined foods in the modern diet. The authors promote a whole foods approach to nutrition that reduces and potentially eliminates all refined foods. This is very similar to the slow food philosophy that is gaining popularity.
Likewise, the exercise and relaxation portions of this program are not radical but are somewhat based in good common sense. Participants are expected to exercise twenty minutes three times a week of virtually any type of activity that gets them moving. Relaxation is guided through various types of formal relaxation exercises such as meditation or guided imagery completed for approximately twenty minutes twice a day.
A Recipe For WellnessReview Date: 2007-06-06
Priceless Information For Lifelong Health and MaintenanceReview Date: 2007-04-25
Even if you think you know the information to wellness they present, "Recapture Your Health" is still a great reference to have linking many common and not so common ailments to the modern day interpretation of stress. Many of us have used one of their key elements at one time or another, but in putting all the pieces of the puzzle together you have a great weapon to use in the war against disease.
If you have not yet had to deal with a serious illness or condition, you can certainly can go a long way to prevent it, according to the book, and maintain quality your quality of life for the years to come.
Something for everyone,
A+
Alternative HealingReview Date: 2007-02-07
What is the real cause of illness?
How can you reduce depression, anger and anxiety?
Is there a natural solution for chronic fatigue?
Throughout the book, personal examples are shown as people who followed this program explain how their symptoms disappeared. Some of the main things the authors recommend is the elimination of sugars, alcohol and caffeine. In order to follow the program there is also a handy list of foods you should include or avoid. If you enjoy reading labels, there is also a section about additives.
After following this program you can expect better sleep, happier moods and less headaches. As the authors say: "...most people lose health because of an unhealthy lifestyle." This book puts you on a fast track with a special section called "quick start guides." This allows you to get started even before you have read a third of the book.
The authors present a discussion about supplements, encourage healthy lifestyle changes and give lists of exercises like Pilates, Yoga and Walking. I also though their list of helpful ways to reduce stress was very helpful.
~The Rebecca Review
Related Subjects: CJD Chronic-Fatigue-Syndrome Chronic-Granulomatous-Disease Chronic-Obstructive-Pulmonary-Disease Circulatory-Disorders Circumcision Cirrhosis Clap Claudication Cleaning-Products Cleft-Lip-and-Palate Clinical-Trials Cloning Clonorchiasis Club-Drugs Cluster-Headache Cocaine-Abuse Coccidioidomycosis Cold-Common Cold-Sore
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