Cerebral-palsy Books

I've read some reviews and have to repeat what someone else has pointed out: Readers need to keep in mind that this stuff happened in the 40's and 50's. You can't criticize the smoking, because at that time, people didn't know smoking around kids was harmful. Smoking was a very normal activity for many adults. If Marie Killilea had known that smoking might be contributing to her miscarriages and ill health of her kids, I'm sure she would have stopped. People didn't know.

You can't criticize Karen's parents for not creating a cerebral-palsy playgroup for her, because they were the groundbreakers in treating cerebral palsied kids like "normal" kids. They were flying by the seat of their pants. My guess would be that they decided they should raise Karen "normally," and having her play a lot with other handicapped kids would not have seemed "normal"--after all, what they were fighting were doctors and other professionals who recommended placing Karen permanently in an institution FILLED with other handicapped people. This book is not a recent book and it has to be read in the historical context. I mean, schools were still segregated when Karen was born. Geez.

I read this book and "With Love From Karen" when I was in about fifth and sixth grade, after my mother gave me "Wren." Honestly, I never thought much about the cerebral-palsy side of the books. I was an only child, I loved animals, and I thought that Karen was lucky to live in her family. The cerebral palsy was kind of a side issue for me. We didn't go to church, and I didn't understand a lot of the Catholic stuff either, but I loved that the family sounded so close.

I think the concern someone posted about publishing this book when Karen was still young has some validity, but--her mom was desperately trying to draw attention to the fact that handicapped kids were okay. She succeeded in a huge way, through this book. She influenced a generation of people, people who would have looked at her daughter strangely if they ever met her, due to her handicap, but, instead, looked at Karen as practically an angel, because they felt they knew her through this book. And after all, when Marie wrote the book, she would have had no idea that it would end up being in print for decades and read all over the world, and that Karen would still be hounded by fans in 2007 (which apparently she is, when they can track her down).

I guess what I'm saying is, before anyone criticizes Karen's mom, they ought to keep in mind that their opinions about what's right and wrong for handicapped kids were probably shaped by Karen's mom, whether they realize it or not. Our whole society was influenced by "Karen." Yeah, everyone knows you don't keep a kid with cerebral palsy hidden in the basement of your house--but hey, America didn't always know that.

I just found a website where I read that Gloria's two daughters, ages 9 and 7 at the time, were killed in a house fire. I actually cried over this. Although of course I never met any of these people, they felt like my family when I was a kid.

I picked up this book in a library toss bin recently and foolishly (not realizing it was out of print) left it on the airplane for the next passenger requiring inspiration. The many 5-star reviews should give an objective reader a clue as to the type of book this is, and the type of writer Killilea was--and that does NOT mean Jane Austen. Because I am something of a 3-star Sally in my reviews, I must add that my usual complaints (poor writing, confusing organization, insufficient editing) are not my reasons for faulting this book. It is fairly well-written (back when editors were editors!), with the insousiance that pervades works by well-fed, country club ladies of the 1950's (Jean Kerr comes to mind) who bore none of the crosses feminism would later burn figuatively on their expansive front lawns.

My beef about this book--please do NOT send me nasty e-mails!--is that I did not find any of the characters, and I include the title character and the author, particularly appealing. As to Karen herself, she was a little girl undergoing a particular education regimen. It was rigorous and stressful, and, being a little girl who, like most little girls, wanted desperately to please those whom she loves, she survived it. But living to tell the tale is not the same as heroism, though nowadays you would never know it, and if Oprah were interviewing Homer about Troy, we'd be listening to the story of Aeneas rather than Hector. I doubt that Killilea's intention was to raise her daughter to a pinnacle, though, and anyone who views the child's story as a triumph over adversity is misreading the book. I believe that Killilea's point was that Karen's story could be ANY child's story, given the same set of favorable circumstances.

So, having attempted to view the author's intentions in a light most sympathetic to me, I sadly must now add that I really didn't like the author ONE BIT. She represents a type of unquestioning, anti-intellectual, rigid Catholicism that makes it hard for other Catholics to be Catholic. Since she flaunts her Irishness, I feel free to whack the ball back into that court by saying that the Italians where I grew up in New York thought people like the Killileas were crazy. I do not know how many Roman Catholics she and her ilk have caused to lapse over the decades; any healthy religion has a spectrum of levels of dogmatism, but this particular group seemed to dominate the Church in New York for a long time (if you think I lie, check the list of bishops in the NYC archdiocese even now).

But I should not air this dirty laundry online! And I should not let my intellectual response to the book be colored by the fact that I now am sojourning in a city that gives full testament to the Catholic Church's exhuberance, wackiness, theological depth, and sensual excess. Killilea was probably an above-average product of her isolated little smoke-filled (literally as well as figuratively!) caucasion world. (I normally make my home in the Baltimore/Washington area, and found quite enlightening her descriptions of the people of color who carried the Killilea luggage on the way to Johns Hopkins Hospital).

Speaking of smoke-filled: Amen to the reviewers who point out the frightening excess of tobacco-dependence. I do believe there was a point in the book in which the author and her husband sit around smoking in the same room where lay their daughter Marie, at that very moment suffering from some type of long-term lung failure. Excuse me? Is there a doctor in the house? (No, wait; the doctors were the ones offering cigarettes.) Maybe just someone with an inquiring mind? (See, it's getting back to the Catholic thing . . . . )

I am 49 now and read this book when I was about 8 years old. (Why a book with curse words was available in the Weekly Reader Book Club for little children to read, I'll never know.) I have never dwelt on any of the negatives that readers are commenting about, with the one exception of the smoking. I do not have CP, but as a child I knew something about me was different. I was premature, late learning to walk, and the slowest runner of all the children - no matter how hard I tried to run faster or how much I loved to run. I had frequent stomachaches & got sick with sinus/allergy/URI's/dehydration regularly every 3 months or so. I almost died at least twice. My ankles turned or twisted very easily. I hated being crowded or hearing loud noises. My legs hurt often, & if I fell on one of my kneecaps, it felt broken because the pain was so horrible. The pediatrician said this was "growing pains", but it wasn't. At the age of 28, I learned that I had "fibrositis", now called Fibromyalgia Syndrome (FMS or CFIDS). This incurable chronic disease - an autoimmune, muscle, pain, allergy/sinus, urinary, colon, and neurological/cognitive disorder in one - can be disabling. In fact, it has been compared to mild cases of spastic CP. Microscopic tears that grew into huge tears (caused by the FMS) made me need to have major reconstructive surgery of my right knee at 13 and my left knee at 24. So reading about Karen's struggles from a young age helped me to also conquer challenges that my own disability has brought into my life. I presently work a full-time job as an administrative assistant for a global company. I love Big Marie's different writing style. Like today's very popular cable show about the Roloffs of Roloff Farm in Oregon (married dwarves who have 4 children, only one of which is a dwarf), who have the problems and disagreements every family has but struggle as a team to make it in an oversized world, the Killileas were a normal family dealing with a precious child who was labeled "abnormal". I loved that they turned the living room into a physical therapy room and invited the "normal" kids over to watch and join in the fun. I loved that there were gouges in the furniture where Karen had vacuumed, and they didn't care. I loved that Karen was not a little saint - she was human, as proved by the stunts she made her little brother Rory carry out, and the "female dog" term she used to get rid of an obnoxious stranger who invited himself into their house. I loved that Gloria had the maturity, discipline and self-control to wait 7 years for Russ, her true love. I'm not Catholic, but I loved that they regularly went to Mass and had spiritual insights. I loved that they taught Karen to take part in what physical activities she could, such as swimming and horse riding. I loved that Karen dealt with severe pain every day (as I do) and HATE that they put that spreader between her legs at night to stretch her leg muscles - like torture! In short, the best part of "Karen" is that she never limited herself by listening to what doctors and therapists told her she could never do, but she surpassed all their limitations and expectations by victories like walking, writing by hand, and getting up & down off of chairs alone. I'm still inspired by this book today.

I have read "Karen" a number of times since my teen years, though prior to purchasing the book, it had been at least 10 years since my last reading. This story of a girl born in 1940 with cerebral palsy -- and all the trials, tribulations, and stigma that went along with its diagnosis, treatment, and daily living at that time -- remains intriguing and engaging.

More than simply an eye-opening account of life with a severely disabled child, "Karen" is a window into another era, even another culture (the story takes place in the well-to-do suburbs north of New York City). The Killilea's were a devoutly Catholic Irish-American family. This is before Vatican II and the changes it brought to the Mass and to the church itself. Smoking was socially acceptable, its health risks not well-consdidered. These things all play into the story.

I feel compelled to address Marie's (author/narrator) comment, during her husband Jiimmy's serious illness, that she would sacrifice her children. I believe other reveiwers have mis-interpreted her remark. She wasn't minimizing her love for her children; she was expressing her extraordinary love and devotion to her husband. Again, remember that the book was written in 1952 and should not be judged as if it had been written in 2006. Language, customs, beliefs, and even our culture were significantly different.

In summary, "Karen" is a fascinating story. Should you take everything in it at face value? No, of course not. Is it worth reading? Absolutely, if not for the day-to-day details of life with cerebral palsy, then for the window into life in suburbia in the early 1950's.

It is also worth noting that Marie Killilea was instrumental in founding United Cerebral Palsy, the organization that still advocates for and supports the cerebral palsied today.

I read this the first time as an adult. I had asked a librarian if she could recommend a good heartwarming book, and she insisted this was what I needed to read. It instantly became one of my all time favorites. The main reason I wanted to review it here, is I notice so many fellow readers complaining about the mother's approach to her daughter's disability, etc, and I want to point out,when Karen was born, the world was a different place entirely. 'Political correctness' had not been coined yet.
Smoking was not recognized as the evil we now think of; in fact, it was common for doctor's to smoke in their offices with their patients. Mother's were not told to quit smoking because they were pregnant. I could go on, but my point is, for the time in our history when Karen was a child, there was no Disability Rights Act. The idea to treat a disabled child with dignity and equal rights were sadly un-common, and this is not the fault of Karen's family. Like all of us, they did the best they could with what they knew how to do.
I think all this P.C. talk is taking away from the underlying feeling of the book. It is a triumph of the human spirit and I see that so clearly and am left feeling good about the strength and courage inside of us that we don't know is there, unless we are forced to summon it, or learn about someone like Karen, who had no choice but to live life the best she could.
I am not condoning smoking or other bad choices mentioned in the book. I am simply attempting to suggest that if that is all you are looking at, you are missing the boat.
This is the kind of book that I love most; it makes me laugh and cry and most of all, it is the kind of story that makes me realize how small most of my problems are.
It brings to mind other humbling people such as Helen Keller. It may not be an equal comparison, but the feeling I derive from it is the same.

This was one of four books that I had to read for an Intro to Communications Disorders class that I took last semester. I was pleasantly surprised what a good read it was. After reading this book I checked into my insurance to see how much coverage I would have for accidents like this one. It also made me think about how fragile life is and how your life can turn on a dime. The brain is complex and vulnerable to trauma both externally and internally. The book also helped me to communicate with my husband about these kinds of accidents. If your language center gets damaged then you can't communicate. I told him that if that happened to either one of us then one really helpful piece of advice is to find a book such as this to see whats going on in the injured person's head. I really appreciate that people take the time to write about their experiences even very traumatic ones such as this.

Crimmon's book was heart-wrenching to read. The story of her husband's TBI (Traumatic Brain Injury) and the after effects of it on her life, his life and their daughter have to be read to be understood. I can't do it justice. She keeps a good sense of humor throughout the book but there is certainly an underlying cynical and bitter tone throughout. Not that I can blame her. It's real. It's life and a it ain't pretty. Personally, after reading this I literally wanted to make all my loved ones wear helmets each day after reading about the hell that TBI can put a family through.

We read this book for book club and we all loved it. Only now I understand what my cousin and his family have gone through after he had an bicycle accident and was in a coma for three days. The writer clearly describes the pain and anguish she and her daughter went through. I admire her absolute commitment to her husband and getting him back on his feet and back to a "regular" life. This is a great and informational book to read for everybody who comes into contact with a person with brain injury.

I read this book in four nights, right before bed. I tore through it like no other memoir before. This book, for me, was like reading my own parents' memoir. My father suffered a TBI (Traumatic Brain Injury) when I was four/five years old. Of course, so much of what was available to the author's husband was simply not around 45 years ago. I understand so much more why my father acted the way he did for the remaining 16 years of his life. This book is powerful. It is honest, raw, intense, lighthearted at times, funny, sad, well written and easy to read (though the subject matter is quite painful at times)... an all around excellent book. I am so glad that I read it, and plan to keep this one.

An honest telling of head injury and what family will experience.

I was shocked at what her daughter, Kelly, was exposed to - I have since read that the author now regrets this. Rehab is NO PLACE for children - or an endless stream of friends. I am sad that her husband's privacy was taken away in order to project 'normalcy' or the authors belief in emotional honesty. She should have protected her husband and her daughter. THIS is the time when you close the door to the world outside and tend to your family - as best you can.

I feel for the author. How quickly the nurses/non-doctors put forth a 'professional opinion' about brain injury. As I often say: Everybody wants to be a doctor, nobody want to go to medical school. You have to see brain injury over a long span of time, which is years and decades. A nurse who sees them admitted and discharged knows next to nothing, unless personally affected.

The beginning of the story was confusing to me because the marriage had so little intimacy. The parents were 2 ships in the night and then they had a child. This little girl was utterly alone through a waking nightmare. I hope she finds the support that she will need as she grows up.

Eventually, the author acknowledges her lack of connection to husband and child and explains herself in a way that is somewhat satisfying.

I appreciate her honesty in the discussion on disinhibition. You can count on it happening and it's real hard to explain to people - especially when you have to.

Worth reading, though disturbing in ways the author may not have intended.

i love this book, and i have read many books on the AT-- this is by far the best account.

'A Walk For Sunshine: a 2,160 mile expedition for charity on the Appalachian Trail' tells the story of Jeff Alt who walked the entire 2,160 Appalachian Trail to help raise $100,000 for his disabled brother. Embarking on an adventure few people would ever think to take on, you will be inspired by his adventures and learn about the simple way of life that might be better than the hectic stress-full ones that we deal with every day. If you are a hiker or just want to be inspired to do great things, this is a wonderful read!!

***** HIGHLY RECOMMENDED

A Walk For Sunshine by Jeff Alt is the story of his 2,160 mile trek-through on the Appalachian Trail, from the southern end in Georgia to the Northern end in Maine. This is the oldest trail in the United States, started in 1921. Jeff's dream since childhood was to walk it without interruption, but it was not until the end of his college degrees in marketing that he was able to do so and to accomplish the feat with an extended purpose. He has a mentally retarded, cerebral palsey brother who is in a care center, Sunshine, in Toledo, and Jeff decided to promote his walk and gather sponsor's money for equipment for Sunshine. With lectures, slide shows, newsletters, emails, and magazine and newspaper articles he gathered more than his goal of $10,000. He perservered through six months of blistered feet, rain, sleet, snow, heat, varmits, doubts, fears, and lonliness to go all the way to Maine. His book, a portion of which goes to Sunshine, is the fascinating detailing of the dream trek, which thousands wish to do and only several hundres accomplish. Jeff now sponsors annual fundraisers and leads short Appalachian hikes to continue to raise funds for Sunshine. He has raised now over $100,000. A really gripping and inspiring book!

Jeff Alt's AT book is a "must read" for any armchair hiker. It will get you off the couch and onto the trail. Whether you hike for charity or for yourself, this book will motivate you!

Reviewed by April Sullivan for Reader Views (2/08)

"A Walk for Sunshine" is a non-fiction account of Jeff Alt's thru-hike of the Appalachian Trail in Spring 1998. The Appalachian Trail, also known as the AT, is a 2,160-mile trail through forests, meadows, mountains, and streams from Georgia to Maine. Hiking from one end to the other straight through takes 3-6 months. Jeff Alt did his walk in 147 days. He did this hike not only for himself, but also as a fundraiser for Sunshine, Inc., a group home for people with disabilities, where his brother lives.

The purpose of this book was for Jeff to tell the story of his hike and how he organized it as a fundraiser. Jeff kept journals throughout the trip and mailed them back home. He did an amazing job of compiling these journals into this book. It was written in an easy-to-read style with short chapters. I felt like I was walking the trail with Jeff. In 3-4 pages we had walked 15-20 miles. His fun storytelling and friendly, easy style made me think. Maybe I could really do this too.

Jeff stresses the importance of family and friends as the inspiration and motivation throughout his journey. Jeff did his hike for Sunshine, Inc., a group home where his brother lives with cerebral palsy and other developmental disabilities. Sunshine organized a short accessible day hike to correspond with Jeff's hike. They sent cards and letters to him on a regular basis. His family arranged to meet him at various points on the hike. Jeff made it clear that he could not have finished this hike without them.

The unwritten motto on the trail is "Hike your own hike." Jeff takes that motto one step further in this book. He extends it beyond the trail. Anyone can reach their goals by taking it one step at a time and doing it their own way and from their own inspiration. A Post Script in the book talks about how to organize a charity fundraiser and life lessons Jeff learned from the trail.

This book really inspired me. As someone who has always wanted to walk the Appalachian Trail, I was so excited to read each page and really soak in what the reality of a three-month hike would take. Jeff makes the point that people need to take the time now to reach our goals--not to wait for retirement or when we have more time. Take the time to make our lives what we want. I recommend "A Walk for Sunshine" to anyone interested in reading an inspiring book about reaching goals.

I am glad I am not the only one who has read and reread With Love Form Karen so many times. I have probably read this book more times than I have read any other book in my life. This story inspired me because like Karen I was born with a birth defect. I am not disabled but Karen's story gave me the courage to face the obstacles in my own life (they paled in comparison to what Karen faced). Marie does focus a lot on Gloria and I feel this as well as the tragic fire that killed three of Little Marie and Gloria's children lead to estraingment later on. The family is old world and very private and will not make their individual stories public. Today they would be on the talk show circuit and making a movie deal. I respect that but it would be nice to know what has happened to them. I always felt there should be a movie but that wont happen because none of the family members will take part in it.

I wrote a review of "Karen" and won't repeat myself here, except to say I love this book--I read it when I was in about fifth grade. I had always wanted to live in a family like this.

The reason I'm writing this is because of a review where someone criticized Marie Killilea for allowing Karen to practice walking (in her leg braces) by mowing the lawn, saying it was dangerous. Once again, you have to keep in mind the HISTORICAL CONTEXT of these books. I doubt very much that they had a gasoline-powered lawn mower back then. She was probably pushing a hand mower, a big heavy non-motorized thing which actually would provide stability for someone who had trouble walking, much like the walker on wheels that my grandmother uses.

"With Love From Karen" continues the true story of a girl, born in 1940 with cerebral palsy, and her family. This follow-up to the 1952 book "Karen" picks up five years after the end of the first book. Karen is now 12; the family has found a suitable house for their unique needs; and Gloria has officially joined the Killilea clan.

As with "Karen," I have read "With Love From Karen" many times since my teen years. Although I enjoy reading it as a continuation of Karen's story, I have never found it as compelling as the first book. Perhaps it is because the breakthroughs are different, or perhaps the writing is simply not as strong.

For those whose interest was piqued by the first book, I heartily recommend reading the rest of the story. If you have not been introduced to the Killilea's by reading "Karen," then you should start there.

The tone of this book is matter-of-fact tending toward upbeat. There are many anecdotes and stories that illustrate the Killilea family's interesting life. Some will make you laugh, others will make you roll your eyes; many will make you think.

A few important things to consider: The Killilea's were devoutly Catholic, and their attitudes and decisions reflect this as well as the era (1950's). The book was written long enough ago that the language and situations, particularly with regard to matters of educating the handicapped, may seem outdated and "wrong." Welcome to the world before the Individuals With Disabilities Education Act!

Readers should also note that the "C.P. work" in the book refers to Marie Killilea's work with United Cerebral Palsy, which she helped to found. She remained active with the organization for many years; read the book to learn more.

I am glad that I own this book, as well as the original "Karen." I am glad to have it on my bookshelf, where I can periodically pull it down, read it, and be reminded how lucky I am to be healthy and have a healthy family, as well as of how much (and how little) people have changed in the last 40 years.

Marie Killilea (1913-1991) wrote WITH LOVE FROM KAREN (a sequel to her first book, KAREN) about her daughter, born with cerebral palsy at a time when little was known about the condition and when many were puzzled over or even afraid of persons with disabilities. The Killilea family's endeavors to ensure Karen a healthy, productive life are great reading, even almost a half-century later. This book relates the adventures of Karen and her lively family from approximately age twelve through her entrance into adulthood. Keep Kleenex handy, because you're going to weep for sympathy and then you're going to howl with laughter. Mrs. Killilea writes with resolute faith, tenderness, and great humor. Although developments in treating disabilities (and people with disabilities) have greatly changed, you'll love the courage and warmth of this book and you may wish that children who happen to be born with disabilities could all have families like the Killileas.

Both books are highly inspirational and leave one with the feeling of being "one of the family." The fight of the Killileas to give their daughter and sister the most "normal" life possible is awesome. When I first read the books as a child, I simply accept this wonderful family into my world without question. As an adult, I would suggest they could not be quite as saintlike at they seem to be depicted at times. Again, from an adult perspective, I know there must have been disagreements and quarrels from time to time. That would just be normal!
I would recommend these books to anyone facing challenges of his/her own. You will be inspired beyond a doubt.
I didn't know about the fire tragedy which took the lives of Russ and Gloria's two daughters and Marie and Ronald's daughter until a few years ago. I can't even begin to imagine the impact this tragedy must have had on the family. Amy@parsley has copies of newspaper articles about this as well as other pictures of Killilea family members.
The best praise I can give these books is that I wish more had been written, following all the family members, because they truly did seem to become "family" to readers. To this reader, anyway!!
To the Killilea children and their families - thank you for sharing such a large part of your lives with us. I hope you have never had cause to regret it. I suspect your stories have inspired more people in more ways than you will ever know.

My son has an undiagnosed developmental delay - similar to cerebral palsy. He is 20 months old and I am so glad that I found this book while he was young (although I wish I had been stretching him since infanthood). We have excellent therapists, but this book is a great reminder of how important home therapy is - and it serves as a reminder to me of the exercises the therapists do. Easy to read and the pictures are a good guide.

This book is filled with helpful, easy to understand info for parents of kids with CP. My daughter is 3 and I wish I had it when she was an infant. I haven't finished reading it, but have learned alot. Her physical therapist even uses one of the walking suggestions (using a hula hoop) and says it's a great idea.

Great book! Very helpful for parents of children with CP. Book was received quickly and was in very good condition.

This book is a great help for many types of motor delays other than cerebral palsy. Highly recommended by the mother of a special needs toddler who is not walking or standing.

I work with students with severe and profound multiple disabilities (3-22 years)and I have found this book helpful when explaining things to my staff and parents. It really is written so anyone can understand and the chapter breakdown lets you go right to the skill without having to read the whole thing. My OT and PT also checked it out and loved the "Tummy Time" section. I would also reccomend "Children with Disabilities" by Batshaw. This is a must in a professional (or personal) resource library.

An excellent book on the clinical localization of neurological symptoms. A bit tough to digest, that's only because it's so rich in valuable information. It should be a fixture in the bookshelf of any practicing neurologist. Everytime I read it, I learn something new.

This book is one of the best books in this field. Since many years I look it up, amazed about the rich content. It is a MUST to any neurologist.

Hi Everyone...This book is amazing. I'm going into Neurology Residency, and got this book to prepare myself. The text is really well written, thorough, very detailed, and easy to follow. Not as thick as I imagined though.

A book intended to instruct with quality, including the tiniest details of the complex neuroanatomy and its semiology. Every neurologist should at least read it.

Once you have mastered clinical neurology and passed the boards, you need this book. It contains all the neurotrivia, all the elements of clinical localization that you need at the bedside and simply can't keep in your brain from day to day.

I'm not talking about elementary stuff like the common etiologies of acute 3rd nerve palsy or the basic elements of the Brown-Sequard syndrome. That stuff is in here but it's assumed that you know it already. No, I'm talking about things like, for example, the differential of sector palsy of the iris sphincter, or the masterful discussion of simple ways to separate out a pupil blown from a Pcomm aneurysm from one that accidentally had some albuterol dripped into it.

Dry: yes, it is. Dull - if you flip it open at random, it makes excellent bedside reading for insomniacs, it'll put you right to sleep. But when you are faced with a physical finding and don't know how to incorporate it into the clinical picture, there is NO SUBSTITUTE for this book. If I were stranded on a desert island and forced to practice neurological diagnosis with only my extensive training and one book to help me, this would be that book.

"Coping with Physical Loss and Disability" by Rick Ritter, MSW, is a jarring book at 92 pages. When I first got it, I thought it would be a regular self-help book, and I admit I was skeptical. But I opened it and it turned out to be a workbook.

There are six sections of the book, going from what your original loss was to how you could ask for and get help for it. In fact, I really had to consider that particular question. "Describe your loss in detail" was another. That was one of those where I had to write my feelings, and like many with disabilities I've told the story so many times, I figured I'd gotten it to a science. It was a blah story with which I started out, therefore; one I'd told a million times.

Then, something happened inside of me. I got angry. I don't do that too much; usually I'm at most irritated and that's that. Life is irritating to me these days for various personal reasons, so that was what the answer was like till that particular switch in my head went off. All of a sudden, there was a real answer. I actually started yelling "What? You want to know about the stupid primary care physician who said one leg was shorter than the other, when it turned out I had a blood clot in it? You want to know about my parents? What...?"

In the end, the question tore something out of me that I hadn't expected at all.

If you read this book, be prepared to do it slowly. At the end, you'll find a section of resources that is very intense. The author even stuck in movies that deal with disability! The book itself will take you to places inside that you didn't know existed, like that bit of anger -- believe me, I had more than one of those. I cried, I threw things, I felt sorry for myself, I sat for long periods of time thinking hard about questions my mind refused to answer but that on the other hand it wanted to. That test of my own will-power hurt a lot sometimes. But believe me when I say, it's very much worth it.

"Coping with Physical Loss and Disability: A Workbook" - Rick Ritter, MSW; LovingHealing Press 2006.

As we prepared for our oldest daughter's amputaion, I searched for something to help guide us along as a family. This work book is wonderful. Although my daughter was emotionally ready for her loss, Rick Ritter was able to better address some of what we may have missed prior to her surgery. I strongly recomend this book for anyone dealing with physical loss them selves or that of a loved one. Joi Warburton, Las Vegas, NV

After reading the other reviews I purchased this book. I have a degenerative muscle disease for which there is no treatment. Although I have coped fairly well up to this point, I was finding myself more and more isolated. As I answered the questions, I felt it would be better if I were going through this process with a professional. I answered as fully as I was able, but there doesn't seem to be any suggestions as to what to do with this information. The book suggests that you share your answers with three people. In my case that wasn't possible.I can see that it would be useful in conjunction with therapy. Without that professional input, the book left me hanging.

Rick Ritter has written a superb self-help workbook that will benefit readers who have suffered a physical loss or disability. Ritter has included 50 questions to be answered by the reader. He recommends these answers be shared with at least three other people. In responding to these questions, the reader is able to reflect on his or her disability or physical loss. The book engages the reader in discovering ways to deal with their physical loss. To those readers who have experienced such a loss, the workbook will provide a sense of empowerment to those still in grief or depression.

Ritter himself has experienced his own disability. As a social worker(MSW), he has had the opportunity to work with 100 people who have suffered a physical loss or disability. His workbook provides a roadmap for readers to follow to reach attainable goals.

Also included are interesting short stories of people he has worked with ranging from amputation, breast cancer, muscular dystrophy, AIDS, Multiple Sclerosis, and quadriplegia. He recounts how these people were able to cope with their loss.

Having a disability or having suffered a physical loss doesn't necessarily lead to unhappiness. How one responds to that loss is what really matters. Rick also uses spirituality, support systems, and holistic methods as an approach to coping with the loss. Resiliency is crucial in facing any loss or disability.

As a mother of a son with cerebral palsy, I can see how this workbook could be very useful. He is now a happy young man working as an attorney. His disability didn't stop him from being productive. Also, having battled my own muscle disease along with rheumatoid arthritis, I found it helpful. As the daughter of a mother transfused with HIV contaminated blood, I can see how this workbook could have benefited her.

The resources included at the end of his book are certainly a bonus. He has listed helpful organizations, suggested reading, and films relating to physical loss and disability.

Rick Ritter has given his readers a wonderful gift. "Coping with Physical Loss and Disability" is an empowering book that will benefit many readers. I highly recommend this workbook. Thank you, Rick for caring. Your workbook will be appreciated by many people.

Nancy A. Draper (Author) A Burden of Silence: My Mother's Battle with AIDS

Reviewed by Christina Gonzalez, LMHC for Reader Views (5/06)

The author starts this very unique workbook with a compelling quote from Christopher Reeve, "So many of our dreams at first seem impossible, then they seem improbable, and then, when we summon the will, they soon become inevitable". This book is a way to help those who have found their dreams become impossible, find new ways to restructure their life, their ways of thinking and their ways of being in order to find ways to help their dreams become inevitable.

This book is oriented towards those who have experienced some type of a physical loss, whether from a disability, accident or including serious, chronic illnesses and pain. His examples range from people who have suffered knee injuries to quadriplegics, to individuals who have undergone a mastectomy from breast cancer to debilitating illnesses like muscular dystrophy. I would see value for individuals with ANY chronic health condition benefiting enormously from this book.

The author suggests that individuals who use this book consult with at least three people in their lives with whom they can share the results of the exercises which is very wise. The author takes the reader through a series of written exercises and anecdotes through six main chapters: Past and Future, Self Care and Support, Dealing with Loss: Feelings and Beliefs, Understanding Disability, Transforming Circumstance, and The Ongoing Process of Loss and Recovery. Each of these remain only questions and words on paper until the reader takes these questions and looks into their lives and then shares them with another.

As a therapist I will be recommending this book to my clients who are struggling with any chronic health issues. I would love to use this workbook with my clients in their therapy as well as suggest they share the information obtained about themselves with others in their lives. The author includes some excellent exercises to help the reader determine what people in their lives might be supportive to this process of recovery from physical loss and/or any chronic health condition.

The appendices include some excellent resources regarding therapeutic techniques and alternatives, suggested reading for coping with loss and disability, films on issues related to physical loss and disability, guidelines for watching films, and a listing of organizations and other resources that can help individuals coping with loss and disability.

As the mother of a child with Cerebral Palsy and as a psychotherapist myself, I found this book to be highly valuable for people dealing with any type of physical loss. As I mentioned above, just buying the book will not do anything. Filling out the exercises will help, but will not make a huge change. Filling out the exercise, following the author on the journey that he is leading the reader on and sharing with those close to the reader will make a great deal of difference. Some of the exercises I found helpful for those suffering from debilitating mental or emotional illnesses and even less acute health conditions such as asthma or others. This book is highly recommended to any individual who has suffered a physical loss and is still struggling to find their dreams. It would make a great gift from a supportive loved one who is also willing to make a stand to be there with the reader as they go through these exercises, and it would make an excellent aid to an individual who is currently seeing a therapist. I would not recommend this to someone who just wants to do the exercises randomly, haphazardly or in order to just keep their answers to themselves and not share them with another.

"Brainlash" by Gail L. Denton is the book my neurologist, my PT, my neuro-psych, my chiropractor, etc. should have recommended immediately so my family and other supporters would have known what might happen during my (now) 4 year ordeal as a MTBI victim. It's written with a sense of humour and it is written to be easily understood. I strongly feel this book would have made it much easier for my family to understand what I no longer had the ability to explain and that knowledge would have made it possible for them to better support the healing process which still continues for me today. This is not only about her recovery but how to enhance my own recovery. Hallalejuah!! Brainlash: Maximize Your Recovery from Mild Brain Injury

This book is a guide to sanity for those who have experienced mild brain injury, as I have. In the fall of 2000, I suffered an accidental fall and spent the following 15 months in a struggle to recover my 'real self". With the aid of this book, I am now fully functional again and able to cope with the minor relapses. I strongly recommend this book to those who suffer, their friends and caregivers.

I have read a number of books on the subject as I am a person who has a brain Injury. This book, more than any other I have read, has been extremely helpful to me. First of all because it explains so well what happens to the sufferer, both physiologically as well as emotionally. The book also gives lots of possitive suggestions for coping as well as for healing.

I fulheartedly recommend this book for both patients as well as their family and friends. It gives much understanding into the issue of brain injury and also much encouragement. It is an uplifting book, at least for me it was!

Thank you Gail Denton.

If you have suffered from a mild traumatic brain injury, as I have,"Brainlash" was the starting point of recovery for me. And I thank God for this book & Gail Denton every day. I quote a paragraph from the book that sums up the point I was at when I started to read BrainLash. "Brain injury races undetected, underdiagnosed, and undertreated through our society." "Between the medical professions ( untrained to recognize it), the insurance community ( unwilling to pay for it ), and the legal sector (unable to represent the loss or grasp the consequences), the mildly brain injured individual has little to rely on and less to go on." And NO!!!! your not going crazy, It just seems that way. The Book is easy to read and finially puts a name on, fully defines,and gives solutions to the symptoms feelings and thoughts that a brain injured person is experiencing but dosen't know why. It is also important to have your family and friends read it so they can try to understand what you are going thru even when you can't understand it yourself. From the resource section of the book I highly recomend that you consider attending the Sensory learning institute and having cranio-sacral therapy. It has been aprox 18 months since my accident and although I feel full recovery is obtainable, it is a long journey and my journey didn't start until I read this book and used its resources.

This book is a must have for patients and families of brain trauma. It clearly states symptoms and stages of the trauma. It tells you what to expect. It isn't a medical description but a patient to patient description in terms that anyone can comprehend. It is one excellent book. Thank you Gail Denton for writing this book.

My husband and I both read this book and it has been such an incredible help to us. We could relate to so much of what the author writes about. She really knows how to connect with her readers. On a scale of 1 to 10, we give this book an 11.

My 8 month old son was diagnosed with CP at 4 months (though we knew there were issues from the beginning due to birth injury). I started reading this book a month ago and am so happy I found it listed as a resource in the book "Children with Cerebral Palsy". The emotions the author feels and shares are so similar and validating that it could not help but to reassure me and to help me not feel so alone. I have wanted to try alternative therapies from the beginning and had only been exposed to cranio sacral therapies. This book is invaluable in that she has already done so much of the research and shares her experiences that it cuts my time down in half and gives me starting points to begin my own research. So many of the things that she shares I had not heard of, but knew in my heart had to exist - she put a name to them. Her ongoing changing feelings and Seth's changes give me an indicator of things to come and things to watch out for, hopefully side-stepping some of the problems she experienced during her journey. I am so grateful for this book!!

A great writer and parent who paved the way for many with this moving book. An extraordinary resource for parents seeking help children with special needs and for adults who have special needs who also want to live full lives.

A great writer and parent who paved the way for many with this moving book. An extraordinary resource for parents seeking help children with special needs and for adults who have special needs who also want to live full lives.

This book is truly inspirational. While the resources listed undoubtedly make the book invaluable for parents of special needs children, it also serves as a metaphor for facing any daunting life challenge.

Jean Little does an excellent job in explaining the life of a little girl by the name of Sal to the rest of the public. This girl is very courageous and goes through some very big hurdles and obstacles, but she is eventually going to get through some of the hurdles, but it will take some time. I think that she does an excellent job with this. If you want to find out more about Jean Little and Sal, read Mine for Keeps.

I just finished reading my childhood copy to my 6 1/2 year old daughter. We both loved it. The family portrayal was lovely as well as the inisght into Sal and her struggles with fears and cerebral palsy. I am dissapointed the book is out of print and I cannot give it to others.

"Mine for Keeps", by Jean Little, is a great story about friendship you can't miss. It's a story about a girl, Sarah Copeland (Sal), who suffers of cerebral palsy (faulty development or damage to motor areas in the brain). She had always dreamed of going home with her family, but when her dream came true, she wished she had never wished for that. Sal has to overcome many obstacles: make new friends, adapt to her new home, and to not look bad in front of others. It is a story about friendship you can't miss, where a girl who use to be scared of everything-dogs, people, school, even dressing herself, finds friendship in a dog. It is a story with an ending that will leave you pleased.

This book can really capture your heart. Sal has just come home to live with her family, after living in a special boarding school, for people with Cerebal Palsey. She gets enrolled in a public school, and makes two best friends, Libby and Elsjie. Elsjie has a brother named Piet, who is also crippled, like Sal. If you like reading Jean Little's books, I reccomend her biography, "Little by Little" This book is a must read!

This is truly the best book featuring a character with cerebral palsy. Sarah (Sally) is the central character in this story. At 9, she has attended a school for children with physical challenges for the past five years. The Canadian province she lives in has no such school, so her parents arrange to have her admitted to the school in America.

Finally, a rehab center opens in her town. Sally's parents move closer to the center so Sally can live at home. Her father flies her back and works like a soldier helping Sally to feel integrated into her rather large family.

Sally has an older, bossy sister named Mindy, a brother close in age named Kent and a sister in kindergarten named Meg. She gets to know Meg because Meg was the sibling she spent the least amount of time with due to her years in America.

Sally's father is truly a rare gem. He is clearly a very intelligent and articulate man and he provides intelligent explanations for things. For example, when Sally, understandably fearful of starting out in public school asks why she was sent out of the country in the first place, her mother flares up. That was needless. Sally needed sympathy and a good explanation, which her father provided. He told her that at Meg's age, Sally could neither speak clearly nor feed herself; she could not walk; she could not dress herself. He summed it up nicely by saying that he thought she would want to do these things for herself. He was truly a delightful character.

Once enrolled in public school, Sally makes friends with classmates Jon and Elsje Jansen and another girl who immediately takes her under her wing. Sally learns that Elsje's brother Pieter had a heart condition that precluded him from attending school for a year. Nursed at home, Pieter nurses a grudge against his illness and insists on only speaking Dutch, thus further isolating himself. It is Sally, his sister and his friends who get Pieter to leave his self-imposed shell to help them with their dog training project.

This is a wonderful book that I have loved since I was a little girl. I even have a well loved copy. It is a real treasure.