Abnormalities Books

This is an honest account of a facially disfigured man who has done lots more with his life than most "normal" men. Anyone who has ever been self-conscious about freckles, a big nose, extra weight or any "perceived" deformity, will feel a kinship with his self consciousness. I certainly did, yet I also felt gratitude that I did not have to go through what he went through. I laughed hard, I cried a few times and I came to some peace with myself after reading this personal little gem of a book, written by a gem of a man.

What a wonderful book this is, though I look at it more as a funny and poignant memoir of someone who has seemingly overcome tremendous obstacles to create a wholesome and very meaningful and happy life for himself. Through significant events in his past, David relates, with great humor, how he was able to overcome the society's burden of judging people by how they look and lead a very fulfilling life. There are some aspects of a "self-help" book about the text, but mostly it is the story of David. At the same time, I found myself looking inward quite a bit and reviewing my own choices in life. David does touch on some aspects of faith, especially in his Catholic upbringing, but the book is mostly about finding the true self within and creating strength and thriving. A warm, funny, touching and thoroughly enjoyable read. I recommend it for all.

If David Roche did not exist we would have to invent him. He is one of those people (and I'm beginning to think there may be more of them around than we imagine) who make this tired planet a better place to incarnate. David is a truth teller, hope giver, path finder, holy clown and, as we now discover, a hell of a good writer. I read the book in one sitting weeks ago and have been letting its stories and images percolate in my mind, heart and soul ever since. David is not a new-age pollyanna. He reminds me of Barack Obama -- whose memior I"m now reading -- in the way he has earned the authority of the one who has gone through the dark night of the soul and has come back to tell the tale. His compassion, optimism and salvific humor come from his willingness to work with his wounded parts. He takes the alchemical path, transforming the "base material" his life has given him into spiritual gold. In modeling, especially as a man in this society, this willingness to look unflinchingly into his own soul he performs an act of service. And love.

Jeff Roche
Communication Arts 610
March 6, 2008
Critical Analysis of The Church of 80% Sincerity
In reading David Roche's The Church of 80% Sincerity, I thought that I would be able to "kill two birds with one stone," simultaneously satisfying my curiosity/interest and sense of obligation as the author's nephew, as well finding an autobiographical text that I could examine with a critical lens. However, while I satisfied one part of the equation, I complicated the other; it's not easy to be critical of family.
But I digress. Roche's book is not truly an autobiography. This work is a testimonio, as it "represents an affirmation of the individual subject, even of individual growth and transformation, but in connection with a group or class situation marked by marginalization," (Couser 88). Still, this description is not entirely accurate, as Roche hardly mentions his connection to and development with a community of performers with disabilities (Roche 6). Yet, to quote Steven Winn off of davidroche.com, "what's most striking, and finally moving, is the way he both draws attention to his disfigurement and makes the audience see beyond it as well," fitting nicely with the first part of the testimonio definition. Thus, The Church of 80% Sincerity is more of a semi-autobiographical, non-linear novel that draws attention to Roche's poignant life stories/events that fit into his overall themes.
One might then ask, what are these overall themes? "It is the story of accepting yourself, despite all of your flaws," (Roche 5). By recounting various life experiences, Roche tells his tale of finding self-identity as a person with a congenital facial disfigurement and the setbacks that occurred at various stages. However, for Roche, humor is a key element in the telling of his story. According to Krefting, the use of humor affords her "the catharsis of laughing at myself and my insecurities, as well as allowing me a modality to criticize/satirize," (Krefting 110). I feel the same can be said of Roche. Humor is one part of Roche's identity, but his is an expansive identity that is inherently tied to his ability to "find my voice...I continue to find it onstage, in the pages of this book," (Roche, 56). In many ways, Roche's path of self-discovery aligns itself perfectly with Gill's description of the four types of integration.
The first type involves one's "assertion of a right to inclusion in society," (Gill 42). Roche has several examples related to such assertions. Whether it was his right to be politically active by voicing his concerns on city buses (Roche 64), or preferences for what he wants in a companion (Roche 101), Roche asserts his right to not be excluded on account of his disability.
The second type of integration relates to "finding a place" within the disability community (Gill 42). Roche's initial avoidance of disability culture can be explained by the factors that made him shameful of his own disability, desiring to be "normal". At home, the issue was not discussed; thus, Roche "never learned to explain myself. Instead I learned the safety of standing to the side," (Roche 34). This, combined with feeling rejected by the god that he was raised to love, led to Roche's (unsuccessful) attempts at passing, avoidance, and later substance abuse (Roche 38). Eventually, by finding "community, the feeling of mutual support and being in it together," (Roche 69), Roche felt empowered to challenge his shame and the oppression of others and stop "pretending to be normal and began to accept myself the way I was," (Roche 6).
Now, in a way this seems good because Roche finds strength in a supportive community. What is disconcerting is the lack of a challenge towards the concept of "normal." According to Lennard Davis, the "the idea of a norm is less a condition of human nature than it is a feature of a certain kind of society," (Davis, 24). Roche never directly questions the very notion of "normal," but rather, he continues to make several "normative" remarks throughout the book, leaving the societal construction of the norm untouched. The closest attempts came by asserting how everyone is unique and that Roche's experiences are "wholly human," (Roche 11). By using the word "normal" in this context, it implies that there is a poorly connoted "other," and there is something fundamentally wrong with a society that requires one to assert their humanity because they are viewed as "other."
"Coming together" is the third type of integration, where one recognizes their sameness and differences (Gill 43). The Church of 80% Sincerity does an excellent job of portraying this stage's classical struggle of self-acceptance. There is no need to repeat the why of the matter, for the same mental/physical barriers that prevented Roche from finding a place within the disability community, also prevented him from accepting himself. Though I criticized this quote in relation to the concept of "normal," it accurately shows the integration of sameness and differences: "My face is unique but my experiences are wholly human," (Roche 11).
"I thought...that my face was an impediment...Amazingly, that fear turned out not only to be unfounded, but also to be the opposite of the truth," (Roche 69). A statement such as this demonstrates that Roche was able to reach the fourth type of integration, "coming out," (Gill 45). Not only does Roche see and accept himself as whole, he takes pride in his appearance while using it for his advantage (performances, keynote speeches, charming himself).
The Church of 80% Sincerity extensively covers Roche's personal development in relation to disability, but he downplays any notion of "overcoming". Rather than stating that he overcame ill-formed patterns of thinking about himself and the world around, Roche discusses several self-transforming "moments of grace." While the lessons to be learned from these moments of grace are well-intended and not overlooked, one cannot help but to be distracted by the fact that self-transformations are "a matter of individual will and determination rather than of social and cultural accommodation," (Couser 80). The fact that Roche discusses matters with more of an introspective focus may cause one to overlook the larger sociocultural factors that helped create the ill-formed patterns of thinking in the first place. For example, a sociocultural model of disability might examine societal conceptions of beauty and the assumptions that are tied to it. However, by examining the "random acts of cruelty" that Roche encounters, such as the man who spit in his face, The Church of 80% Sincerity points out the inherent flaws in all of us (Roche 40). Although this does not directly challenge sociocultural factors, it is a step beyond the phenomenological level.
And yet it is difficult to be overly critical of these "moments of grace," because all of these individual, phenomenological experiences have led Roche to form the backbone of his "Church of 80% Sincerity." Although no physical church actually exists, the "Church of 80% Sincerity" can effectively be classified as a lifestyle choice/ way of thinking about the world. The Church is an abstraction "for recovering perfectionists, You can be 80% sincere 100% of the time, or you can be 100% sincere 80% of the time," (Roche 7). Many tenets of the Church are mentioned throughout the book, but the primary tenet would have to be one that calls for self-acceptance, despite one's flaws. One could argue that "The Church of 80% Sincerity" is a sub-set of disability culture, one could even go so far as to say the Church is disability culture. If one takes a look at Gill's work on the eight core values of disability culture (Gill 2-3), one would quickly see that the Church embraces the majority of these core values throughout the book, with a few additions of its own.
On a final note, Roche is very modest about being seen as an inspiration by others. Yet, it is in this modesty that Roche fails to acknowledge the fact that his high level of intelligence and incredible sense of humor assisted him in his identity development and ability to work though challenges; perhaps Roche is modest because of the fact that he was not always looked at as an inspiration, either by himself or others. Roche's work does a good job of challenging the notions of the theoretical gaze and stare, as well as the diagnostic gaze (Millet 26) by reiterating his own experiences with the Western model of medicine. Roche relates his early medical encounters, "One by one they came forward to examine me...If our eyes ever met, it was only a nanosecond before theirs turned away with easy, practiced avoidance," (Roche 53), "You never talk about feelings...or anything!" (Roche 54). This breakdown of the medical experience into feeling like a subject to be examined and gazed upon was a powerful one; stirring up emotions in the reader, as well as inciting Roche to action, as he later became an expert on the physician-patient relationship.
Ultimately, Roche and the "Church of 80% Sincerity" seem to align themselves with many of the core values of Disability Culture. Although one might choose to criticize Roche for his lack of social resolution, political agenda, or inherent call for change, one must realize that that is not what The Church of 80% Sincerity set out to do. This was a story of "courage, faith, inspiration, and laughter...to understand that you and I are very much alike, with our gifts and our flaws woven together," (Roche 11). The majority of the criticisms presented here were merely a means of expanding upon Roche's already solid foundation of self-love, tolerance, and an appreciation for the uniqueness of the human spirit.


Works Cited

Couser, Thomas G. "Conflicting Paradigms: The Rhetorics of Disability Memoir." Embodied Rhetorics Disability in Language and Culture. Ed. James C. Wilson and Cynthia Lewiecki-Wilson. Southern Illinois University Press, 2001. 78-91.

Davis, Lennard. Enforcing Normalcy: Disability, Deafness, and the Body. London: Verso, 1995. 1-49

Gill, Carol J. "A Psychological View of Disability Culture." First published in Disability Studies Quarterly, Fall 1995. www.independentliving.org/docs3/gill1995


Gill, Carol J. "Four Types of Integration in Disability Identity Development." Journal of Vocational Rehabilitation 9 (1997): 39-46.
Krefting, Rebecca. "'The Taming of the Sun': Finding the Joke in the Cancer Narrative of a Pedagogue." Disability and the Teaching of Writing A Critical Sourcebook. Ed. Cynthia Lewiecki-Wilson and Brenda Jo Brueggemann. Bedford/ St. Martin's: Boston, 2008. 109-116.

Millet, Ann. "Disarming Venus: Disability and the Re-Vision of Art History." FemTAP (Summer 2006): 21-39.

Roche, David. The Church of 80% Sincerity. New York: Perigee, 2008.

My wife, Wilene, and I saw David Roche perform THE CHURCH OF 80% SINCERITY on stage in 1996. It had rocked us with laughter and moved us to silence. When we finally spoke, I said to her, "He should write a book!" Now that didn't qualify me to be a prophet in his church, but it did make me a proud parishioner, because now that his message is out in print, everyone has access to Reverend Dave's gospel. And, that is a blessing!

David was born facially disfigured and I will say no more about that, because whatever I could possibly write, it would pale before David's words as he chronicles his life in this magnificent little book. I have known David for about fifteen years and what I love about the CHURCH OF 80% SINCERITY is the very thing that I love about him. It is about the place where he lives, the intersection of pathos wisdom and humor. When reading it, one is never a sentence or two away from the integration of these three forces.

Another potent and enchanting aspect of his writing lies in his ability to pilot the reader down the same road he is travelling. As David allows us to examine the grief,anger,love,and joy of his life, we are simultaneously compelled to examine and reexperience our own. Ultimately, what the book reveals is that David's journey has been been an alchemical one. We become very clear that he turns lead into gold, and there in lies the gospel; the good news that we can do the same. -- at least eighty percent of the time! -- I can't recommend it enough!

It took me a year and one failed order due to relocation to finally get this book. Definitely worth it.

This book encompasses the growth of Rob's life and his marriage to Julie, along with his leap into parenthood. The introspection is a sad, funny, and in a few ways shocking (even for longtime website readers) journey undertaken during Schuyler's life. The love for her is beautiful to read, and the challenges Rob and Julie have faced for her are admirable and inspiring. I hope to use Rob's blog (or subsequent books if he does any) to continue to watch Schuyler grow and succeed beyond all expectations as she takes on the world.

Simply put, Robert Rummel-Hudson's Schuyler's Monster is a must read for every parent and educator. With raw emotion, he tells the story of his family's journey through the maze of parenting a child who appears perfect and yet somehow, something is not quite right. Rummel-Hudson doesn't hold back, he writes honestly about his wife's and his own efforts and reactions, as well as those of all the professionals that they encounter along the way. In doing so, he has created an accurate picture of the limitations of the medical and educational services available to some. Unfortunately, many people don't even have that.

As a special education teacher for 27 years, I hate to admitted that 30 years after PL 94-142 was passed, we don't have more to offer. Public education will always be a work in progress. Perhaps Schuyler's story will help move that work in the right direction. Which is why you need to read it.

You say your not a nonfiction reader? Never fear, this book reads like a novel. Rummel-Hudson keeps the story moving, making it interesting, entertaining and humorous. Warning! You may just become a dedicated blog reader, so you can keep up with Schuyler's journey.

I couldn't put this book down. I'm pretty picky about what I read and this was a beautifully written story, worth every minute I spent with it.

I found this book in the Black Oak bookstore on a recent day trip to Berkeley with my youngest daughter (the one who was never 100% neurotypical), and it's turned out to be the best possible souvenir of a wonderful day. Unfortunately, thanks to Robert Rummel-Hudson and his improbably funny, engaging style (how many books about neurological disorders and fights with special education administrators can lay claim to having many laugh-out-loud moments??), I've gotten no housework, homework, cooking, cleaning or other reading done in the three days since I acquired the book--and I got a lot of funny looks from the other parents at the neighborhood water park today, as I sat, happily oblivious to the periodic spray of water cannons, laughing wildly like Schuyler over my book while my kids played nearby. Thank goodness the author keeps a blog, so now that I've finished the book I don't really have to say a final goodbye to him or to Schuyler--I can just keep tabs on them periodically, and make sure they're doing okay and continuing to thrive in Plano.

This is a beautifully written story I would recommend to anyone. It had personal meaning to me as I have a child with special needs.

This book was so great! I cried, laughed, and was so deeply moved I was loathe to close the book. Great!

The book was in excellent shape and was received within 2 days! The book is wonderful by the way, a warm read.

This book is not just for parents of children with special needs. The lessons learned by the author and her family and the details of their struggle are beautifully written. Reading this book nudges the reader to think about the blessings of children and the trials of daily life in a new way. A wonderful, inspiring book!

Jeanne McDermott paints an inspiring portrait of her own family, forced to understand and live with the trials and hardships that accompany a child born with Apert Syndrome. She tells the story of Nathaniel with grace and candor informing the reader along the way with insights into the medical, genetic and developmental aspects of this condition. I cried with her pain and embraced her joys through the trials and triumphs of this journey. For anyone who has had a child born with a medical condition this is a must read.

I love this book. My 2 1/2 year old son went through four surgeries in his life time and I can so relate to the recall of ICU's and operating rooms. My son also has a form of dwarfism and will be different. I love her philosophy, so much peace and forgiveness to stranger's rudeness! She has so eloguently speak of the growth that any parent of child with differences have experienced. Babyface will be kept close to my heart forever and I recommend this book to all parents who are struggling with the challenge of bring up a child with a difference. In time, you too will gather the strength and peace demonstrated so well and articulated by Ms. McDermott.

I especially appreciated the authors in depth reflexions on disability and body image, both as a child and an adult, especially for women (in her case) but for all of us.

This is a very special and unusual work. Emily's description of growing up with a deformed leg, and all that entailed is honest and difficult at times to read. Nonetheless, there is no self pity, just a straigtforward and detailed description of what it was like emotionally, physcially and spiritually. There is a lot of pain in this book but it is really a coming of age story as well. The writing is wonderful. It is very personal and yet informative especially about the efforts to obtain a prosthiesis that allowed Emily to function as normally as possible and the advancements made in the field over a 20 year period. Finally, the unwavering love and sacrifice of her parents was portrayed simply and gratefully. I read it twice and the second time was better!

I love to read memoirs, especially "little guy" memoirs. Celebrity memoirs are okay, especially if the celebrity is a writer, but time after time I'm drawn to books written by ordinary people. I find it easy to imagine myself in their lives. So it was small wonder that I gravitated to POSTER CHILD with its cover picture of a pert red-headed girl posing with her training bike. It's warm out. She's wearing shorts. Her artificial right leg looks like it's made of plastic; a bulb in its knee joint lets her pedal.

Emily Rapp, the author and the poster child, turned out to be a remarkable writer. She told me her story in such detail, including emotional detail, that I was swept into her anguish of being a child and a young woman who had a portion of her leg amputated when four. I had no idea, really, when I picked up this book what living with an artificial leg would be like. But soon I felt I was alongside her as she went through dozens of operations to replace her artificial leg as she outgrew it.

Listen to how clearly Rapp writes. "For my first fitting, I stood barefoot on the dirty floor of the changing room while the prosthetist took measurements of my stump. The stink of the healing wound was finally gone; the limb was clean. Now that the left foot had been removed, or "disarticulated"--the sharp sound of the word matching the rough nature of the action itself--I had my natural heel at the end of the short leg."

But no wonder Rapp writes well. A Fulbright Scholarship recipient educated at Harvard, she is a professor in the M.F.A. program at Antioch University Los Angeles.

I highly recommend this book, primarily for the skill with which Rapp leads us through the first thirty years of her life, showing us what it was like to live with her "grievous, irrevocable flaw." Unflinchingly honest and sometime darkly humorous, POSTER CHILD is written without sentiment. I watched her struggle to keep up with her fashionable friends, her agony about making love to a man (should she leave her prosthesis on? off?), her final, tenuous, gift of acceptance.

An elegant writer, an amazing book.

Marilyn Coffey is an award-winning writer of poetry and a widely published author of prose. Read her work at Amazon.com: GREAT PLAINS PATCHWORK, MARCELLA, or KANSAS QUARTERLY Vol. 15 No. 2.

One of the best autobiographies I've read. It's heartwrenching, but with no self-pity. It's also funny and dry with great prose and turn of phrase. Outstanding!

Rapp's beautiful description takes you through the crowded streets of Korea, the romantic cafes of Dublin, the dingy offices of doctor after doctor as she tries to get a leg that fits, all the way to the brutally honest mirror in her bathroom. Or is it yours? Her story is frank and engaging. Her struggle one that each one of us can identify with at some point in our lives: the struggle to be "normal."
Poster Child is one of those books that makes you question your own values and assumptions. Poster Child is one of those books that will stay with you forever.

A delightful book covering some of the most unique and entertaining acts presented over the years in Side Shows,Circuses,Stages,and famous Rooms in Europe and America.Although I remember going to Carnivals,Side Shows and the Circus since I was a kid in the late 40's and after.I also remember many great Magic and Illusion Shows over the years ,brought right into our home via Television.I always had a preference for the side act,oddities,daredevils,illusionists,etc., over the animal acts.Yes,I can still see the Monkey Woman,the King and Queen of the Midgets at home in their Castle in Montreal. Then there was the World's Smallest Horse,The Alligator Boy ,whose body was covered in scales,the man without arms who drew portraits with chalk using his feet, A Flea Circus where real fleas did all kinds of things,even pulling a tiny carriage, and on and on.
What surprised me most about this book is that many,even most of the people and acts covered were new to me.I guess this sort of stuff was more popular in the 18th,19th and early 20th Centuries and more so in Europe than America.I really haven't seen much in recent years. I guess Political Correctness and activist groups have had a major impact on these acts and people. The media is forever doing a story about mistreatment of animals in the Circus etc. Maybe the diversions this kind of entertainment gave us did us more good than realized.I know as kids we waited with anticipation for the Circus to come to town and particularly the Side Shows that accompanied them. I can tell you one thing,there was no need to drug up the kids on Ridlin,then,like you see today.
For my money,I would far prefer to watch an act like La Roche climbing the spiral tower while inside a sphere;than any Olympic event.To me ,shaving one hundredth of a second off some record I've seen hundreds of times is pure boredom.It seems that the most excitement is created with announcers debating calls by referees ,judges or as a last resort;who has failed a steroid test or broke some rule.
So, if you ever saw a good Side Show, saw some great feat of magic or illusion;this book will give you some wonderful memories of how entertaining this all was.It is jam packed with photographs and wonderful illustrations ;both in color and B&W. You may have to make a bit of an effort to find this book.It is out of print, but thanks to finding books on the Net now,It is available at a wide range of prices and some even signed by the author.It is a "must have" for anyone who loved this form of entertainment that may become a thing of the past.All we can hope for is a revival.

"Learned Pigs & Fireproof Women" is a tour of peculiar performance through the ages by modern master and scholar of the magic arts Ricky Jay. Each of the book's 17 chapters is dedicated to a different type of performer that awed audiences with his or her unusual skill or expert illusion. These are not all practitioners of misdirection or deception. Many are people who possessed very real unusual mental or physical talents. And some were not even human. There are scholarly pigs and horses, slight-of-hand artists, hypnotists, faith healers, poison resistors, and mind readers. Also featured are painters who happened to be limb-less, a blind and dumb musical prodigy, daredevil divers, mnemonic sensations, sword swallowers, musical farters, a man who could grow 6 inches at will, and more.

The book does not attempt to be comprehensive on its subjects. Ricky Jay limits himself to "pioneers or refiners of peculiar performance". The truly extraordinary and inventive, not their many imitators. So many famous and impressive performers are not included. Ricky Jay's writing is precise, fluid, and conveys his admiration and awe at these human oddities and pioneering showmen. Jay's occasional references to his own experiences when they are relevant add interest. There are black-and-white reproductions of posters, playbills, and other illustration throughout. In the center of the book are 16 pages of full-color poster reproductions. "Learned Pigs & Fireproof Women" is an education in eccentric performance and the unusual, determined individuals who have created it. And it's great fun.

As a magician and card wielder Ricky Jay is fascinating to watch as well as listen to. As a writer Mr. Jay also brings his own fascination at the work of others to play and writes a truly well-written, very interesting and enlightening book about the arcane world of many sometimes downright odd entertainers.

Thorough in his presentation of details Mr. Jay's book is well-researched and his appreciation and awe for these unique people makes us quite enthralled as we read page after page about performers such as Le Petomaine, with his unusual ability to produce sounds of musical quality from a most unusual source on his body.

Ricky Jay, besides being fascinating to watch, is also fascinating to read.

This wonderful book profiles some of the most unusual entertainers of all times: calculating pigs and acrobatic horses, stone eaters, poison resisters, daredevils, and mind readers. The contents of this meticulously researched and lovingly presented book often boggle the mind, inducing, at times, a wonderment that is nearly stupefying. Profusely illustrated with contemporary broadsides, lithographs, and photographs, the book is also enlivened by JayÕs seemingly inexhaustible knowledge of each performerÕs antecedents, biography, and critical reception. Engrossing from start to finish, but particularly notable for JayÕs account of the controversial career and bizarre death of mind reader Washington Irving Bishop, whose story beggars imagination. Also not to be missed is the final chapter on Joseph Pujol, whose career as Le PŽtomane was based on his ability to create music and sound effects with the least reputable of bodily orifices. A treasure

In Learned Pigs and Fireproof Women, Ricky Jay takes on the history of oddball performers: men who claimed to cram their entire bodies into quart jars, armless ladies who could paint miniatures holding a brush between their teeth, gentlemen whose specialty was to enter large ovens accompanied by raw meat and exit (unharmed) with fully-cooked steaks, as well as mind readers of all sorts and species (human, pig, and horse).

Organized into chapters by skill by oddball skill, Jay is sometimes able to document such performers back into the 1700s by tracking newspaper reports, handbills, etc., many of which are reproduced in color plates and black-and-white photographs.

Ricky Jay occupies an engaging hole in intellectual space between enthusiast and academic. He is comprehensive in the extreme, but his writing style is anecdotal and he does not go for any elaborate sociological explanation of why such performers exist or what they `mean' to society. He just wants you to have fun, and perhaps to freak you out just a wee bit.

The book is also very nicely designed; its large wide pages lie flat and there are loads of remarkable illustrations. Definitely worth a look!

The very nature of this topic is difficult to accept given its sadness. However, with only the very-well-made movie to capture its subject, this book helps define everything, thereafter. Nothing can alleviate the weight of its subject matter; but, it does help one to interpret the man, more than the mystique. Ultimately, it makes you glad that Mr. Merrick did have a graceful exit from life given the dire physical deformity that shaped it.

This book cannot help but touch every human being who reads it! With so many disabled people in our world, and our pre-occupation with appearances and the body beautiful, the elephant man story covers all the physical and emotional aspects of living with an extreme disability with dignity and humility for all readers to experience. Of course the help and support he and others must receive all helps. Peter Ford presents his extensive research findings on those that came to the elephant man's aid in a personable way. Although the film is based on his life, the book reflects Joseph Merrick's life in reality, politely comparing the differences between his film persona and his real life condition. It helped me to fill in the gaps left after watching the film and left me with a thankfulness of how well off my family and I are.

'Tis true my form is something odd
but blaming me is blaming God,
Could I create myself anew
I would not fail in pleasing you.

If I could reach from pole to pole
or grasp the ocean with a span,
I would be measured by the soul -
the mind's the standard of the man.

I bought this book many years ago, unfortunately I made the mistake of lending it to someone and I never got it back. This is a remarkable book. I was touched by Joseph Merrick years ago. For the past nine years, I have been running the Joseph Carey Merrick Tribute Website. It is a site dedicated to Joseph, the person - not Joseph, the disability. I'm presently heading a London and Leicester (UK) campaign to have a commemorative plaque erected in his honour. He deserves to have a permanent tribute. He has done a great deal to advance medical science, through his skeleton, and thanks to him, there will one day be a cure for Proteus Syndrome. It's time the world said 'thank you'. Please give your moral support by visiting the site. I'm not sure if web addresses can be mentioned here, so simply type the following in your web browser: Joseph Carey Merrick Tribute Website

Very good and in-depth book on the life of not only Joseph Merrick, but also Mr. Treves and many other people who happened into his life. Can you imagine even for one minute being in this guys shoes? I mean can any of us even begin to grasp the sort of life Joseph must of had to deal with? Can you imagine being so utterly repulsive looking (sorry, but he was) that just one glance at your face would make people flee, children cry, and women pass out, I mean think about just how horrible that would have been. He also suffered from chronic pain, and smelled something awful. Yet, beyond that he was such a kind, gentle, shy, caring, lovable and curious individual, who by all accounts would of been completely normal and was highly intelligent. What a life, what a great true story of a very strong determined soul.

With twelve viewings so far, David Lynch's "The Elephant Man" has been my favorite movie for about twenty years, indeed one of the very few movies I would call a masterpiece. So it is quite a mystery why I should have waited so long to read this biography of its protagonist, Joseph Carey Merrick, whom the movie, following errors in the source material itself, incorrectly names John.

Having already seen a decent BBC documentary on the subject ("The Curse of the Elephant Man"), I was not totally unaware of the facts of the case, and I already knew for instance that Joseph spent some time in the countryside, something which Lynch decided not to depict in his film so as to achieve a more complete immersion in his bleak, black and white vision of Victorian London (indeed, one type of shock a fan of the movie will encounter while reading the book comes from its occasional touches of colour : I remember being struck by the blue bunsene light that lit the Elephant Man's face when Treves first met him.)

What is most surprising about the book, is how the film managed to be so faithful to Merrick's psychology (Lynch's John is the true Joseph, not some Hollywood fantasy), while altering many elements in the background, most of the secondary characters being dramatically different.

To mention a few of the changes from reality to film :

Joseph's manager as a freak, Tom Norman, was turned by the screenplay into Freddie Jones' very Dickensian Bytes, who beat and exploited his freak. Actually, Tom Norman was one of the few decent persons whom Joseph encountered before his change of fortune, enabling him to save as much as £50 (enough to live for a year without working) over his short career. The true evil was in fact the British government, which decided to ban all exhibitions of freaks as indecent (and references to Joseph's "nakedness" suggests that they may well have been), thereby forcing them out of the market and depriving them of their livelihood. To the writers' discharge, though, it might be argued that the fictional Bytes was a composite of Norman and the evil Austrian impresario who robbed Joseph of his savings in Belgium, which somewhat minimizes the gratuitousness of an all-too-typical Hollywood slur on the entrepreneur.

One of the famous scenes of the movie, in which Joseph attends a pantomime, is asked by Treves to "stand up" before the audience and is applauded by them, is a complete reversal of the true incident. Actually, Joseph attended the show incognito, and the most stringent precautions were taken to keep the rest of the audience unaware of his arrival, presence and departure (but then, the screenwriters needed their second "stand up" scene for dramatic reasons.)

In the film, Anne Bancroft's Mrs Kendal is shown visiting Joseph regularly at the hospital. Actually, the actress never met him in person, though she did send him her photograph and other presents. On the other hand, Princess Alexandra, who is shown much more sparingly in the film, did visit him several times, and send him Christmas cards.

The scene in which Michael Elphick's night porter introduces a bunch of drunks and prostitutes into Joseph's rooms may also be an exaggeration from much more minor real-life incidents. Also, on his return to London, Joseph did not find refuge in the toilets, but in the waiting room of the railway station. As for the model church he made, Lynch hides the fact that Joseph was actually using commercialized cut-and-assemble models from the local bookstore, which the nurses helped him assemble. The film makes it appear that Joseph had some wonderful artistic gift and was very dexterous, whereas his enormous right hand prevented him from even working in the cigar industry.

One thing I was curious about was Joseph's religion, as the film has very little to say about it, or about religion at the hospital in general. His mother was a Baptist, and the Bible was a book he had read several times over. When at the London Hospital, he was "confirmed" by an Anglican "bishop" (I am using scare quotes because as a Catholic I believe Anglican "bishops" are not validly ordained and, being mere laymen, do not have the power to confirm anyone) and allowed to participate in church services at the chapel.

Howell and Ford's book is truly a biography everyone should read. It gives an excellent picture of Victorian London, conditions in Poor Houses, the whole milieu of country fairs and freak shows and life at the London Hospital. It also contains a two-page autobiographical piece by Joseph himself, and the relevant extract from Treves' famous "The Elephant Man and Other Reminiscences", but it is well-researched enough to point out the few errors and inaccuracies in these primary sources themselves. It also corrects erroneous interpretations in Ashley Montagu's earlier book on the subject.

All in all, this is a superb read, which could serve as concrete argument against a culture of death which is too ready to consider some lives not worth living. "Happy every hour of the day", after all, was how Joseph himself described his life at the hospital. And his happiness is one of the things most readers will paradoxically end up envying him.

Well, I read this book last year and I LOVED IT. It got kinda...eekee... in the middle. (Rubbing on a mummy anyone?) But it is really good and is probably in my top 10 favorites list.

Abel Dandy is a normal boy in an abnormal world. Born to "freaks" and living in a sideshow, he's never felt special, until the Siamese twins give him an Egyptian ring and he is suddenly haunted by dreams of a beautiful dancing woman. Abel, accompanied by his friend the "dog-boy" Apollo, decides to leave his comfortable home of protection and acceptance and make his fortune. Abel eventually finds himself in a traveling freak show where the people (including abducted children) are abused, neglected, and bullied. Intriguingly, Abel discovers a mummy in the show that seems to speak to him in dreams. Klause's refreshingly unique and fascinating story is populated by charming and frightening, sympathetic and grotesque and human characters. The magical story concerns all kinds of deformities and abnormalities and the "freak" in everyone. Fantastic and engaging read. Grade: A+

"When a boy's first romantic interlude is with Phoebe the Dog-Faced Girl, he feels a need to get out into the world and find a new life. So I thought as I stood in the wings and watched Colonel Kingston introduce the next act. Not that I had anything against Phoebe. She was a sweet girl under all that fur. "Oh, Abel," she whispered prettily whenever I brushed her lips with mine, and perhaps she blushed -- who could tell? -- but I was seventeen and yearned to kiss a mouth sometimes without getting hair up my nose."

Come on...with an opening paragraph like that, who could you not love this book??

Abel Dandy had grown up in the world of "Freaks". His parents were considered human oddities, and he lived amongst them in Fairyland, a compound that was the home of Colonel Kingston's Freak show. But because he was "normal", Abel just didn't fit in. His uncle had taught him to throw knives, but there didn't really seem to be much room for a normal boy in a show of Freaks.

So Abel decided he was going to go off and join the Circus, and make his own way in the world. Armed only with his knives and a mysterious Egyptian ring given to him by Rose and Violet, the Siamese twins, Abel left Fairyland to try to make it on him own.

But nothing seemed to work out like it should. The circus that he joined, wouldn't let him try his hand at knife throwing. It was filled with perfect people that looked down their noses at the ones they considered human oddities. Then it was discovered that Abel was followed, and his young friend Apollo, the dog-faced boy, had stowed away with the circus. Since the Marvel Circus had no use for freaks, both were thrown out.

But when the two were picked up by the sinister Dr. Mink and his Monster show, bad things started happening. Abel had a bad feeling about Dr. Mink. But Abel's need to protect the young Apollo and the other children that were being held by Dr. Mink was strong. And what did all of this have to do with the mysterious dreams he kept having about the beautiful Egyptian dancing woman? The one who was calling him to save her.....

Annette Klause has done a wonderful job of painting the world of freaks. She has a special knack for showing us that there is a little "freak" in all of us. This book isn't so much about oddies as it is about acceptance. Accepting who we are and being able to live with that. And accepting others, not matter what differences are between us.

On top of that, there is a great mystery to be uncovered. This book is filled with action from murder to kidnapping.....and even a bit of a ghost story. Abel Dandy is such a strong character. He feels he is lacking in some way because he ISN'T different. And yet, he has such a strong sense of right and wrong, that he is willing to put his own life on the line to help the people he considers a friend, no matter what the consequence. It's a mesmerizing tale, and one that I highly recommend.

There are moments when you go to the bookstore with a specific purpose in mind, and you come home with the treasure you set out to find. There are other moments when one can wander around the bookstore experiencing myriad temptations, but nothing speaks to you. And then there are times like I had yesterday afternoon. Times in which you wander quite aimlessly to and fro and then a book catches your eye and you feel its pull and you just know that you will have to leave with that book. Yesterday that book was Freaks by Annette Curtis Klause. The full title of the story is Freaks: Alive, on the Inside, but I prefer the simple title and will thus refer to it in that regard for the remainder of this review.

There is no mystery regarding my initial attraction to this book:

It was the James Jean cover that did it! The cover art of James Jean never fails to illicit that response in me. The fact that this book was written by Annette Curtis Klause, whose novel Blood and Chocolate is a New York Times bestseller, sealed my fate.

I was currently in the middle of another book, but true to my nature I arrived home that day with the intention of just taking a taste of this novel before returning to my current read. Dame Fortune had other plans. An introductory quote by Edgar Allan Poe and the line, "When a boy's first romantic interlude is with Phoebe the Dog-Faced Girl, he feels the need to get out into the world and find a new life." was all it took...I was lost.

Freaks is the story of 17 year old Abel Dandy, an oddity amongst oddities, as he is the only non-freak in the freak show. An ever-present sense of not fitting in prompts Abel to leave the only family he has ever known to seek his fortune elsewhere. A parting gift of a scarab ring and words of fate spoken in his ear bring Abel Dandy dreams in which a beautiful and mysterious woman beckons to him with words of passion and pleas for rescue.

Freaks is a teen novel, and as such I was not sure what to expect. Having seen Tod Browning's controversial 1932 film of the same name, I had visions of this novel treading along those same paths. I had no idea, however, of the truth of that film's inspirational influence on this novel and found myself pleasantly surprised with the depth of emotion and the powerful sense of community and family that inhabits these pages.

Annette Curtis Klause has written a thoroughly researched tale of life during the time when freak shows and traveling oddities were a booming business. That research (which she discusses in an afterward) lends such a strong sense of history and realism to the story. Set amidst that backdrop is the story of a young boy coming of age, struggling to find identity during the twilight of adolescence and the dawn of manhood. And if that isn't enough, Klause deftly weaves a mysterious Egyptian reincarnation romance, reminiscent of the subplot in the film The Mummy Returns, into her tale.

Within a few pages, Freaks becomes a page turner. Mystery, suspense, and danger rub shoulders with romance, adventure, and intrigue. Powerful messages about acceptance of those around us lie just at the surface and yet those messages are never preachy or forced. Klause uses her words to provoke such an immediate sense of caring about these characters that you feel their plight and from the very beginning you are rooting for their success.

Annette Curtis Klause deserves praise for writing an adolsecent male character with a voice that feels genuine. The sexual urges of a seventeen year old boy are a very realistic part of the tale and yet the references to that aspect of adolescence are never treated as lurid nor included to shock or titillate. Those aspects are treated with respect as are the urges of teenagers to leave the comfort and protection of their parents behind to make their own way in life. Maybe men just aren't that hard to figure out, but I still give Ms. Klause her props for giving voice to a male protagonist that will resonate with males who read this book.

This is a beautiful little trade paperback book that tells a beautiful story of love and friendship, of the cruelty of the world and of the need to stick together to fight that cruelty. I could not put it down and yet I am very sad now that I have finished it. I miss the characters in this book already and imagine that I will be revisiting them again in the future.

In the author's note Ms. Klause says, "...and I didn't know that I would fall in love with my characters as much as I did". I didn't know that I would either, but I am so glad that I was given the chance. They are wonderfully realized and I already consider them old friends.

I highly recommend this book. It is a fascinating look into a part of our past that no longer exists wrapped up in a wonderful, adventure-filled romance. I look forward to reading more of Annette Curtis Klause's work soon.

This book gripped me from the very first page. I never could quite get into Annette Curtis Klause's previous books, but this one was up my alley. I've always found circus freaks interesting--the way people were marketed just for being different, regarded by the general public with awe, fear, and/or fascination, how they must have lived in this strange combination of fame and admiration and being set apart from the rest of the world. Ms. Klause captures all this and wraps it up in a fascinating story.

There is a large cast of characters, but she handles them all well, creating a memorable, distinct and highly likable group. I especially liked the sweet (and sometimes bittersweet) romances between some of the "freaks" that play out over the course of the book. The book is also a great page-turner, with constant action, but it never seems like page-slogging action like some books...I was always invested in Abel's fate.

If I have one complaint, it's Abel's own romance...although the scenario was intriguing (I won't give away too much), I wish the girl had been better developed as a character, and several flashbacks didn't quite work for me. However, this is a very small nitpick--I enjoyed this book as I have enjoyed few other YAs to come along in recent years.

I remember that day in the library when I spotted this book. I had read the front cover and thought I might have interest in it. When I finally had read it, it was Extraordinary! The book can make you cry and laugh. I think a novel should have both these characteristics. I can read this book over and over again and I have the same emotion when I first read it. One person in my camp asked me what I was laughing at and I quote my exact words, "This book. I am reading this one part over and over again, and still I'm laughing." He said, "That's ridiculous! How can you keep laughing at the same thing?" I guess he had no idea. Well, it's not exactly his fault, he hadn't read the book. I'm not looking forward to returning this book because I think that I can read it over and over again especially when it's on the top of my bookshelf.

By: Cheri W.

I haven't come across a book that I couldn't let go until I finished it.

That last one was Harry Potter The Sorcerer's Stone many years ago.

True Blue is worth reading. I highly recommend it!

True Blue is a very emotional book. It was written by Jeffrey Lee. Molly is the new girl at school. Two girls are mean to her. Especially a boy named J.T who makes fun of Molly and her dad.

Right before this book began, in the prologue Molly and her dad were in an accident. That changed her dad's life forever. Now he has trouble eating and speaking. Molly meets a boy named Chrys. But she thinks he is very weird. When Molly saw Chys's secret, she stares in awe. But when she does see him she is on the roof and she fell off. Luckily Chrys saves her.
I loved how Molly found out about Chrys's butterfly wings. I also enjoy how Molly and Chrys became friends. I thought this book was very emotional how Molly had to take care of her Dad's injury from the accident. I dislike how Courtney and Vanessa were mean to Molly. I also dislike that J.T makes fun of Molly's dad and Chrys.


There were many main events in this book. Here are a few. One is that Molly and her dad were in an accident. Also when Molly and Chrys were in a science competition and right before they go on their presentation is ruined.


I thought this book was very outstanding. I enjoyed it a lot. I would recommend it to anyone who like reading realistic fiction books and sad ones too. Will Molly and Chrys win the science competition? If you want to find out read True Blue!

I'm going to tell you about the book True Blue. The author is Jeffrey Lee. The main
characters in the story are Chrys, Molly, Molly`s parents, and Chrys's parents. Chrys and Molly both have secrets. This story takes place at Molly's new school which is Chrys's regular school. It also takes place at Molly's house and Chrys's house.

True Blue is about Molly's life, meeting new friends, and sharing secrets. Molly's dad has been in an accident. He is now in a wheelchair. Molly soon feels guilty because she thinks she caused the accident. At her new school, she meets a boy named Chrys. They are similar and alike in ways. They eventually become best friends. At first they were both lonely. Now they have each other. They share secrets, but Molly still cares about her dad. Her mom does too.

I loved this book. I thought that it was interesting because I could not put it down. True Blue is one of my favorite books because it left a cliff hanger at the end of every chapter, and I like fiction books. The author of this book made me feel like I was in it. I wanted to keep reading on and on because I wanted to find out what happened next. I would definitely recommend this book. I would recommend this book to kids who are in 4th and 5th grade. This book is the best. If you want to find out what happens next in the story, you should read it. You'll love it. Girls and boys will like it.

Jeffrey Lee's True Blue tells of two outsiders: Molly the new kid, Chrys the weird kid. The two form a bond because of a science competition, only to find other links which go beyond coincidence in this story of friendship.

I ordered another book when I first found out about my daughter. I found it tailored toward the medical profession and definately hard to understand. Then I found this book. It was much easier to read; it spoke to me in words I could understand as opposed to just medical terminalogy. I refer to it often. It seems to have a little bit of information about everything that my daughter either has, or will have, to deal with during her life.

I've done a lot of Internet searches for information about spina bifida. This book is the best overall source I've found. I highly recommend this book for parents and caregivers of children with spina bifida. My daughter is now two years old, and I still refer to this resource often.

I purchased this book when my daughter was prenatally diagnosed with Spina Bifida. Since she's been born I have purchased more copies for family members. This book is an excellent resource for parents and loved ones. It teaches about the condition and related concerns in an easy to understand manner. This is by far the best book I have found on Spina Bifida. I would HIGHLY recommend this book to anyone who is expecting/has a child with Spina Bifida. I would also recommend it for family members and caregivers of children with Spina Bifida.

This book is a wonderful book for anyone who knows of someone dealing with a child or teenager with spina bifida. Its very organized, informative, and even has several photos of kids with spina bifida. I highly recommend it!

This is one of the two books we ordered when we found out that our baby would be born with sb. We have read lots of books since then and still think this is the best. It is very comprehensive, presents the information well, and I have referred to it often over the past 8 months. We ended up purchasing several copies to give to our family members so they would understand what is going on with our son.

I obtained a copy of the play from my local library think that it would resemble the movie; it did not. This play was so riveting that I read the play 4 more times while in my possession. The Elephant Man by Bernard Pomerance follows the tragic life of Joseph Merrick. Pomerance wrote everything just right to complete a masterpiece. Pomerances use of diction and dialogue took the read right into Merricks hospital room in turn of the 20th century London.
While reading the play, I found myself becoming emotionally attached to Merrick as he transformed from a horrid animal to a person of intelligence and wisdom. Each time I read the play I picked up the little things Pomerance wrote about how cruel humanity can be to things they don't understand.
I found myself finishing the play and then turning back to page one. The play was enthralling. Expanding my mind to the world before me while ironically keeping me away from it. The Elephant Man should be dispersed to high schools nation wide, so teenagers have the chance to read and annotate a great piece of literature. This play is great to read for your own pleasure. It will expand your mind, and rethink your position in society.
A strong worded masterpiece like a cannonball ripping through the literary cannon. I recommend this play to anyone of any age looking to expand their mind and thoughts of the society around them.

I read this book in my Literature class where we began a journey into the life of Joseph Merrick(The Elephant Man). Merrick was born physically deformed that would scare anyone but had the most pure heart. This play is about how society drove this man into obsurity to hide his hideous face under a burlap sack until his oversized head falls back and he dies a most poetic death.

I obtained a copy of the play from my local library think that it would resemble the movie; it did not. This play was so riveting that I read the play 4 more times while in my possession. The Elephant Man by Bernard Pomerance follows the tragic life of Joseph Merrick. Pomerance wrote everything just right to complete a masterpiece. Pomerances use of diction and dialogue took the read right into Merricks hospital room in turn of the 20th century London.
While reading the play, I found myself becoming emotionally attached to Merrick as he transformed from a horrid animal to a person of intelligence and wisdom. Each time I read the play I picked up the little things Pomerance wrote about how cruel humanity can be to things they don't understand.
I found myself finishing the play and then turning back to page one. The play was enthralling. Expanding my mind to the world before me while ironically keeping me away from it. The Elephant Man should be dispersed to high schools nation wide, so teenagers have the chance to read and annotate a great piece of literature. This play is great to read for your own pleasure. It will expand your mind, and rethink your position in society.
A strong worded masterpiece like a cannonball ripping through the literary cannon. I recommend this play to anyone of any age looking to expand their mind and thoughts of the society around them.

This play by Bernard Pomerance is one of the most moving and beautiful scripts I have ever read. The dialogue is richly textured and has many layers of subtext, including implications about British colonialism. I chose to see the play as, among other things, a metaphor for the British view of the "white man's burden" and their fascination with the idea of the "civilized savage", but I think the most brilliant works of art are open to myriad interpretations. Although a play needs to be performed to fully come alive, Pomerance's script stands alone well, as a poem or novel would. Its words go to the core of the human experience.

I can think of few films that have touched me as deeply as Lynch's "The Elephant Man." Hence, I was prepared for an anticlimactic theater piece when I picked up the script and subsequently attended the play. To my surprise, it's every bit as powerful as the film--in no way a replacement for Lynch's supreme achievement but a necessary complement to it.

Pomerance' play concentrates on Dr. Frederick Treves, whose experience places him in the company of Conrad's Marlowe. By the end of the play his promotion to knighthood is one more empty Victorian consolation added to a career that has become meaningless. In his powerful, climactic "corset" speech he rises to social indictment of the highest order--a recognition of the "horror" and a denunciation of the shallow, exploitive, self-deluded, spiritless society that he would prefer to be no part of (his epiphany is also suggestive of Charles Smithson's in "The French Lieutenant's Woman").

Juxtaposed with the film, Pomerance's play makes us aware of the power of the theater of the imagination. Unlike the movie, whose requirements for verisimilitude led John Hurt to putting on facial make-up for six hours prior to each day's shoot, the play's John Merrick appears without disguise. His normal features are soon replaced, however, by the audience's realization that Merrick could be--and is--any one of us.

Both a little less realistic and less sentimental than the film, the play is at the same time a provocative and moving study in self-discovery.